So I've been stuck in the Monday for the last few days. As I have had no money until today when I got paid from the job centre.
My night time route is to pot (I don't have one), I don't wake up till 12pm if not later.
So today woke up about 11-12, sorted Ursula (the cat I'm fostering), I got ready, grabbed my shopping list and card and key (gas and electric) and went to catch the bus to go shopping.
Arrived at Asda and begin my shopping, bumped into some friends while round and some at the same till, and had a little natter with them.
Anyhoo I have been finding hard today to do since tasks, harder then normal as I can't stand at the sink very long to do my dishes as as soon as the pain gets to bad I have to abort and sit down :(. I am trying not to stay seated for to long as sometime I sees-up and can't get off my sofa. But I had to come to bed earlier then normal cause the pain in my legs. I have taken my medication for the first time in days as I haven't been in any pain or felt the need to take them. But now I'm lying in bed waiting for my medication to start working.
So I'm thinking if I don't get a letter from rehumtology tomorrow I'm going to ring them as it's rediculous, I'm hoping to start college in October and if in going to be in this much pain it's pointless applying...
If I can push for a wheelchair then hopefully it won't be to painful.
Also I have a friend with FMA and hypermobility and she has applied for DLA/PIP and has been refused, I'm guessing its cause she isn't as bad as me I know she uses a bike to get around and has lost loads of weight. She had a stairlift put into get house but was told she couldn't carry her daughter on it so she removed it as she couldn't see the point in it, apparently she was also refused DLA/PIP cause she works, even though it's not means tested.
Any ideas or advice I could give her