eyes

[megmog]

does anyone have probs with there eyes or eye, one of mine keeps twitching alot and is very painful,and feels like its got a film over it ,x

[crissy]

I have the same my dr just gives me drips that dnt work!

[XsjcX]

A twitching eye is usually a sign of tiredness, but it shouldn't be painful. I advise you to talk to your GP about it, or your Optician.

[Hidden]

I find my eyes are very sensitive to light, any light. My eyes stream when it's really sunny even with sunglasses. Hubby bought me some higher strength lens sunglasses and they helped a bit. I get the gritty feeling in my eyes too and they feel very dry, like I'm trying to blink over sandpaper. I went to the chemist and my Doctor gave me Hypromellose eye drops - Eye lubricant used for tear deficiency. The drops don't harm your eyes and really help when your eyes feel dry or gritty. They worked a treat for me.

(If your eyes aren't behaving normally and you have twitching, blurred vision or any pain, it's advisable to get checked out by your Doctor who may be able to treat you or refer you to an ophthalmologist who is a specialist in medical and surgical eye problems.)

[Hidden in reply to Hidden]

hi read your reply and smiled cose i thought i was nuts .. i need to wear sunglasses in the sun any sun and some shops hurt my eyes so it nice ish to know xx

[Pat16]

I have suffered with dry eye syndrome since getting Fibromyalgia 15 years ago and also high pressure in my eyes. I was diagnosed at the hospital by a small test they do and just put in Liquid tears which are quite cheap to buy at a chemist. I was then referred back to the hospital about 3 years ago by a different optician because of hight pressure. Since then I have been about 8 or 9 times and been prescribed lots of different drops which have just made my eyes worse. They don,t seem to have come up with an answer for the high pressure as yet. Also I have never seen the same person twice. About four weeks ago my doctor wrote to them again because I feel I have something in my eye and my sight is all blurred. I am still waiting for an appointment. I find this quite worrying because I thought you had to report eye problems immediately.

[Hidden]

For reference - (Hypromellose Eye Drops are also known as Liquid Tear Drops)

[Hidden]

Pat16 - presumably Pat as you have been examined at a hospital you have seen an Ophthalmologist. From what I have read up about increased pressure in eyes it says "How your Ophthalmologist chooses to treat you is highly individualized. Depending on your particular situation, you may be treated with medications or just observed. Your doctor will discuss the pros and cons of medical treatment versus observation with you." Have you had your situation discussed with you to rule out certain eye conditions? It seems very excessive to be given 8 or 9 different types of eye drops which have only aggravated your eyes.

Seeing different people each time you visit seems to be common these days with the lack of continuity of care, it can be extremely frustrating can't it. Would it be worth seeing your GP again I wonder and perhaps asking for another "urgent" referral for a second opinion to another Ophthalmologist. (I say urgent so hopefully you won't have to wait too long.) This will allay your worries and hopefully get you the treatment you need. Our eyes are precious, if you aren't happy, go for another opinion.

[LindseyMid]

Definitely see your doctor and an optician. Don't let them put dry or painful eyes down to Fibro without thorough testing as Sjogrens Syndrome may be to blame.

[Belle67]

@Libbydee You are the first person I have found that shares the sensitivity to light problem. I have terrible problems with it, sometimes not being able to use my laptop or watch tv because of the glare from the screen. I too have strong sunglasses which help a little.I am sorry you share this problem but it's nice to know i'm not alone.

[Hidden in reply to Belle67]

I fully sympathise with you Belle, it's awful isn't it. Even as I sit here typing on my laptop the screen is quite dark, I can't bear it light at all. I also can't bear fluorescent lighting or any electric lighting. Although I have always loved the sunshine, sometimes when I walk out of my front door I have to walk with my head down even with sunglasses on, it's crazy. When I am on my own at home which is a lot of the time these days, I tend to live a Dickensian way with candles lol as this sort of lighting is soothing and doesn't affect my eyes at all. If someone at home switches the light on suddenly I almost jump with the shock of it, my eyes run and so does my make-up lol! I am also extremely sensitive to noise of any kind and tend to hear peripheral sounds more intensely than sounds that are really near to me. So if someone is talking in the background I tend to pick that up more clearly than someone talking directly to me and sat next to me! I have heard that others suffer from the light and sound problems, so it isn't unusual with Fibro. Just another thing we have to get used to, the joys of Fibro

[Hidden in reply to Hidden]

Sounds like Christine has this too! It is more common with Fibro than we think.

[FionaP in reply to Hidden]

I too have light sensitivity and noise. Sunshine can sometimes totally blind me and I've had this for 30 years. Like you LibbyDe I have a dark computer screen and candle light. All room lights are 20w visitors find it hard ha

[Bella_Baby in reply to Hidden]

Hello all My eyes are sensitive to light too. I have read through all your comments about it, and nodding my head lol. I can so resonate with all of the different types of light you have all mentioned. I sometimes have to wear my sunnies inside. When i get to go out, It's a must that i have my sunnies with me. Glare is full on. Flouro lights are very harsh.. gives me headaches. That flashing light from when one is in the car and passing trees with the sun behind them... wow.. that is soooo true. Headache plus! The lighting in our home is also dimmed alot. Visitors nearly always mention it.. or ask to put an overhead light on haha... i have lamps with extra coverage on them. Looks like candle light. That kind of light is the most comfortable.

Noise is full on too. Sometimes i'm ok with music.. but it's touch and go with that. I think it also depends on the type of music. Anything else is really annoying. gives me headache and major irritation. So.. living in a quiet place is very important.

Answer to the OP...

I also have twitchy eyes... sometimes an eye can twitch for a week! and I think thats why it gets sore. I have an 'achy' eye atm. But, i think that maybe coming from the TN i have. (Trimenginial nerve pain) It's so complicated... and it does serve us to make sure that there is nothing more going on.

Wish you all better days ahead

xox

[eviemadison]

i have never put my dry eyes down to my fibro at the moi am using oftaquix & pred forte in them that what the hospital give me will have to ask them when i go back in march x

[marymcd]

my left eye keeps going orange yes the white of my eye goes orange, have been to eye hospital for treatment but been told it can happen again at anytime, luckily for me it has not happened now for almost a year (since "painful" treatment) but i used to get it 5-6 times a year and could not see properly from eye when it was bad

[Bella_Baby in reply to marymcd]

Hello Mary

What exactly is it? What caused it?

[marymcd in reply to Bella_Baby]

was told it can just happen when have fibro, no know reason lots of people have different problems with eyes through fibro, my eye just goes orange for unknown reason

[Bella_Baby in reply to marymcd]

Wow.. must be very worrying when that happens. Feel for you. xo

[OuchOuch]

Hi I get burning dry eyes too. Been to GP and eyeperson and told that it is DryEyes - which I could have told them first. Still never mind. I now buy from Boots a special spray that can be used over make up but has to be used on closed eyes. It doed help a bit. About noise; I too can hear far distant sound or very quiet sound but driven bonkers by traffic noise etc. I leave my radio on very quietly at night which helps me go to sleep. My cat likes it too.

[LindseyMid in reply to OuchOuch]

Were you actually tested for Sjogrens?

[Abbeystead]

I too am having problems with my eyes. Can only open my blinds about an inch of a morning and my face is swollen as well. Also cant bear to have a photo taken as the flashlight leaves me disorientated. Its 5.p.m. and have only just got out of bed for the day even though I had a goot nights sleep,But as my husband was watching the cricket downstairs thought I may as well stay in bed.Fell back to sleep,which was the wrong thing to do because when I wake up I have an awful pain in my neck face and eye. Have tried dry eyes but they;re no good. Given up going to doctors, they;re a waste of time. Just do my own thing now and have finally learned to say NO and dont care what people think of me. Have given my life to my family,which started my FM and ME off in the first place,working and trying to look after their children, but I cant keep up with them now soI have to take a back seat, to hell with them. Gone a bit off track now sorry. Its because we keep things bottled up and once the floodgates open, everything comes out. Sorry if I.ve bored you. I know there are a lot of people in the same position.

Ha, feel better now, needed that!!!!!LOLX

[Bella_Baby in reply to Abbeystead]

hello Abbey

Please, don't be sorry honey. It happen's, and there is nothing wrong with it.

It's good to allow yourself space. Stepping back from pleasing everyone else is a good idea. Rest and emotional healing is really important for all of us with this illness. Keep following your intuition on this... because it happens to all of us at some stage... We have to focus on ourselves for however long it takes, so we can learn what treatments, both medical and natural, that can help ease our pain. Happiness is very important in this fight. Put yourself first for a change.

xox

[Abbeystead in reply to Bella_Baby]

Thanks Belle for answering,I appreciate it. Another sh...y day. Things seem to be getting worse day by day but no good going to the doctors,they dont want to know. Wish I could have a large Brandy like I used to do years ago, but it only makes my face go like a turkey cock these days. Even deprived of a little drink, Quality of life is now nil but at least the telly isnt too bad these afternoons and maybe,just maybe this damp weather will go away soon.. Heres hoping and thanks again.

Cheers, Avril.Liverpool.

[LindseyMid in reply to Abbeystead]

Hi Avril, have your GPs not referred you with these symptoms? They should do!

[Abbeystead in reply to LindseyMid]

Have seen a rheumatologist who confirmed my Fibro,which I have had since 1989. Was suppposed to go to Fibro Man.Course in 4th January but pain was so severe could not walk. So cancelled 2 days prior in case they could give my place to someone else. Dr has been a bit ofpig with me because I didnt go. Told him he wouldnt see me again and I wont bother him, Fed up going, as everything I go with its the same old thing FM is blamed for everything. However have a Pain management Apt. When that comes I will try my best but the pain is so severe now I am having diffulty getting out of bed and doctor wont make home visits. Have husband here which is a help, but no life for him either. Have told doctor about my face flushing but he just said he didnt know what it was, but I'll have to go and see another doctor maybe as it seems to be affecting my eye as well now. Its just that I,m so fed up these days. Every day is the same. I also have Lymphodeama, Diverticulitis and Arthritis and loads of other niggles. Started in 1989 after a bout of flu and developed into ME. Was goling through a lot of stress at the time. Did everything at twice the speed of sound,, now takes me all my time to bend down to pick anything up. Sorry for going on, bet you're sorry you asked.lol! Still got my sense of humour though and what's so annoying is that Like a lot of FM sufferers I look so bloody well. Bye for now and thanks for getting back to me.

Avril.

[LindseyMid in reply to Abbeystead]

Did you see the rheumatologist recently (last 6 months) or in 1989?

If it wasn't recently, you really need to make an appointment with a different GP. Let them know you'll need a double appointment when you book so you get more time. Then write down a list of everything that is happening with you and take someone with you.

With your symptoms and complex conditions, you should be getting far more medical attention than you have been. It is not acceptable that you are being fobbed off with "it's Fibro". It does really concern me, so I hope you can find the strength to try and find a GP to actually listen to you.

[Abbeystead in reply to LindseyMid]

Lindsay, sorry if I.m late answering you but I have only just received your message. Only got out of bed at 4.p.m. as I justy couldn;t get up. Rang the doctor a week ago today asking for a visit but he said he would make an appointment for that afternoon. I rang back in the afternoon and told him I still wasn't well enough to come. He rang back later and told me just to ring again next day to make another appointment for the next day if I didn't feel better. I'm just hitting a brick wall now. Waiting for Pain Man appointment. Just trying to get through each day as it comes now.

I saw the rheumatologist in September gone,I think. He did refer me to a Fibro Clinic 8 weeks later, but I couldmt make it because I was in too much pain. All the medication they have given me never seems to work so I think they have lost their patience with me. Will just have to see how things go and hang on in there. Tummy has been bothering me a lot today,thinks its the IBS but this is most pronbably with all the stress I;m under in not knowing where to go for help'

Anyway Lindsay thanks for your message although I was only informed on Hotmail today.

Hope you are well. Look after yourself.

Avril.

P.S. Was first doagnised with FM in 1989.

[Bella_Baby in reply to Abbeystead]

Most welcome Avril

Bloody doctor's... they make us feel worse most of the time. Don't give up though, there are some that are ok with it. Just a pain in the arse to try heaps out before finding one that you are happy with. I tell ya, I'm glad i did it though, because it makes a big difference seeing a doc that actually listens and is willing to work with me. I'm no longer so standoffish about going.. which is a good thing.

I'm hearing you about the alcohol. Ohhh how i wish i could have a few too! lol My fave was a 'rusty nail'... equal amounts of scotch and drambuie over lots of ice... omg.. i really want one! hehe. Agree about the telle.. its really a good companion at times isnt it.

It's so crap being in a hole. I crawled out of one a couple of weeks ago... really understand where your at. Keep getting up when you can.. try and get good water into you.. eat meat when you can. And, watch anything that lifts your mind, makes you laugh.

You maybe in a hole atm honey... but, you won't be there too long ok. Don't give up... because the day will come again where you will feel upto seeking out better help again.. and you will be glad you did.

Love and light to you

xox

[Fibro-hater in reply to Abbeystead]

Ahhh that made me laugh. I too have the same horrible redness after a Brandy! Doesn't stop me though, when I'm at home at least! Yes roll on Spring then maybe we'll all be better for a dose of Vit D. We all need some 'currant bun!'

[floozy]

hi ive just been to my optician with my eyes and was told it is yet another symptom of fm ,it effects the muscles behind the eyes. Also bright lights , loud noise , lots of busyness , strong smells, are all part of sensory overload that effects fm sufferers,

[Hidden]

thanks for making me normal ... sunglasses are my must xx

[sloth]

My eyes often twitch when I'm stressed or because I've done too much. My eye sight as well keeps getting worse. Don't know if that's a fibro thing, but my mum also has it and she has poor sight too.

[LindseyMid]

I'm sensitive to what is effectively flashing lights like this too. I had loads of neuro tests done and the strobe test didn't set off seizures but did cause a migraine!

[Abbeystead]

Thanks a lot Christine you obviously understand how I feel. Have just had to turn down an invitation to my grand daughters wedding. There is no way I could sit for hours at a wedding reception. At last have learned to say No and honestly, I feel sorry for not being able to go but I certainly dont feel Guilty.Sense at last is prevailing. I dont think she'll be very pleased with me though but TOUGH. I love her to bits and will always be here for her, as she should be for me.

Thanks again.

[Abbeystead]

Thanks Christine. Will do that,explain to her (although I doubt if she'll believe me as she knows I don't like the chap she,s marrying) but that apart I would have done my best to attend had I been able to. However,my husband is going and giving the speech as her dad is hopeless at those sort of things. I did say at the beginning,as you advised,that if I was well enough I would go. In agony at the moment and that,s with just trying to put my tights on!! There's just no end to it is there having to think every movement before you do anything.

Your advice has been taken on board and I hope you are feeling OK. How does your Fibro affect you and how are you managing it?

Avril.

[Abbeystead]

Chris I do admire you for what you are doing. As I said earlier I have had this since 1989 when I went througha stressful time. I tried to fight it for years, Forcing myself to go into work but after about 2/3 days kept having to go home, un til I came to a full stop and eventually had to give up on medical grounds.Fortunately, it was easier to get sick pay all those years ago.I was 51 and now am 74 and as well as the aches and pains of old age taking over I have to contend with this. The nerve pain in my buttock,neck, in fact everywhere is unbelievable now and I know things will only get worse. All my little and large bits!! are starting to wear out.

So pleased you have this little job to take you out of yourself. You've certainly been very kind in answering all my posts on here and I very much appreciate it. You're certainly doing a good job listening to all our moaning and giving good advice,

God bless.

Avril.X.

[tinkerbell66]

hello all .

been reading all the articals on here i to suffer with fms which is so disabling ,i suffer with dry and cant stand bright sunlight ,iv got to wear tinteded glasses when driving ,allso glasses when using computer ,iv had fms 1999 and suffery from tirdness to ,doesnt help when broke my ankle in october still on cructhes now ,but now my hips are realy hurting,and knee playing up .i allso suffer with arthritse and lumber and survical disc degentive desease ,which iv had for 10yrs now but was told only last year , ,

so with my ankle ,fms and every thing else i feel im falling apart ,does any one suffer depression as it comes and goes and feels the walls are closingf in allot of the time , and get very tired during the day ,iv learnt to do little and often which does help and have family to help with house work . extra ,dont be ashamed to ask for help on your bad days ,which iv have learnt over theses last 6 months .

[Cazie50]

Yes, I have Sjogrens and I use a gel several times a day for my eyes (can't remember the name of it) and Salivex Pastilles for my dry mouth and Dermol 500 for skin. I think general irritations can be quite common, as I think we are very sensitive to dust, atmosphere, lighting conditions etc.

[Clur]

I also have sensitive eyes, I can not go out without my reactalight specs, my eyes which are normally dry stream with water like I've been chopping onions.

I cant stand bright shop lights either. I know what you mean about the fashing light as you drive by trees, that sends me haywire.

I also cant see well in the dark so when I turn lights down to accomodate the brightness problem I bump into things and trip! Cant win some times.

I also have perception problems where I think theres a step or the floor is ligher or lower than it actually is, I either look like I'm doing the Master of funny walks or I fall over.

I am also sensitive to sound.