FIBROMYALGIA

[RIBBONPINK]

HELLO FOLKS HAVE HAD FIBRO FOR ABOUT FIVE YEARS.I HAVE SLURRED SPEECH AND STUTTERING AS WELL AS SEVERE PAIN IN MUSCLES AND JOINTS.TOTAL FATIGUE.IBS.MIGRAINES. FACE NEURALGIA.NAUSEA.HEAD FOG.MEMORY LOSS.CANT WALK FAR NOW USE A WHEEL CHAIR WHEN GOING OUT.BALANCING NOT GOOD .I CANT TAKE PAIN MEDICATION MAKES ME VERY SICK. I DO USE MAGNETIC NECK WRAP .IT RELAXES ME AND EASES THINGS A LITTLE.I DO CROSSWORDS .GO ON WEB DO RESEARCH .MY PETS KEEP ME HAPPY.I AM LUCKY HAVE A WONDERFUL HUSBAND WHO UNDERSTANDS ME.AND I HAVE MY FAITH.GO TO CHURCH WHEN I CAN.WHICH KEEPS ME STRONG. I USE ARNICA GEL ON MY MUSCLES TO EASE.

[Hidden]

Hi there welcome to the site ... We are lucky that there are lots of members and people are around at most times of the day or night

We have lots of information at

fibroaction.org

Looking forward to seeing you on the forum

VG x

[janlou]

Hi I had been dx with Fibro in May...My life has totally changed since Nov 2011. I worked full time has a nursery nurse, wife and Mum to 4 children 3 of which are mine, and a step daughter...Was very busy with work and kids and weekends with football. When all of a sudden my life tipped upside down....Pain I have is awful and sometimes even brushing my teeth I am worn out.

What really upsets me is my lack of independence, I cant drive anymore this is because my reactions are too slow. Have to relie on either my eldest daughter or my husband to take me out.

I am only 46, but feel like 100!!!

All I do is sit at home, start having physio the end of June, so I hope that will help me on hopefully the road to get my life back. We moan wen we work, but I really miss my job, and yes it was stressful, but it gave me a focus, and now thats gone... Sorry for the moan, but I wish I had my life back to how it use to be.

Jan x

[RIBBONPINK in reply to janlou]

HI I KNOW ICANT TAKE ANY PAIN RELIEF MAKES ME SO SICK AM ON THYROID MED STOMACH MEDS FOR HIATUS HERNIA.I GET REALLY DOWN IN DOORS ALL DAY.TODAY I AM TOTALLY EXHAUSTED.IF I DIDNT HAVE MY PETS,I HAVE TO RELY ON HUSBAND TO TAKE ME OUT.I WEAR KNEE SUPPORTS TO STOP MY KNEES GIVING WAY,.I TRY AND FOCUS ON POSITIVE BUT SOMETIMES I CANT ITS GOOD WE CAN COMUNICATE ON THIS SITE THANK HEAVENS.I TRY TO DO RESEARCH TO HELP. TAKE CARE

[Ginsing]

Hello from me. It always saddens me when people join US because it means someone else is suffering suffering from this rotten hidden painful disease. Any way welcome we are not always serious often we have . Fun and madness hope you enjoy. xgins

[Cookie72]

hi there welcome to the site, I havent been on here long just a matter of weeks, but its a good site where u can rant and rave and feel sorry for yourself, there is always someone here to listen, it also fun especially when the volunteers decide to go oin a picnic or go find Nanrnia thru the wardrobe, just keep coming back and you will understand what \i mean, and even join in if you feel able to. Ivr had firbro and spondylosis of the lowerlumber spine for over 40yrs now, fibro is a bummer of a condition and affects so many parts in your body and does so much to us, but we try to overvome it, and its helps to be mad and to be on here lol, hope you have a better day tomorrow gentle hugs to you ....Dee x

[Hidden in reply to Cookie72]

Aww cookie you missed the summer fayre.... Don't worry moffy watered down all the bottles on her stall and foggy stole the ducks and San ate all the cakes ... And I found some highly dodgy magazines donated for the book stall

[Cookie72]

by dodgy do you mean REAL dodgy, did u save one for me or are they too dodge, guess I didnt miss much if moffy watered down the bottles, but they I didnt know you could water down water, clever girl moffy

[Hidden in reply to Cookie72]

I had to confiscate them ..... they were donated by moffy and you know moffy and thengin .... She only drinks it cos its clear so no one can tellits been watered down till its too late....

[Hidden]

Hello

It's very nice to meet you, having fibro is the pits, over the last few years

I would of been lost without the people in here, it's only people who have

This life changing thing that can really understand.

Every one is helpful, in here, I'm not sure about this fayre I have been all

Round England with my jam and still can't find it

Love viv

[Hidden in reply to Hidden]

Awww viv you missed the jam making competiton ... I am sure you would have won a prize cos the entries we had were rather pungent shall we say ...

[marg54]

Hi I've had fibro now for over 13 years I was comming home from work and was in a car crash and damaged my spine and was in a wheelchair for over 8 months I was so over the moon to get out of that wheelchair , but sadly over the last 3 years I'm back in a chair as the fibro over the years is getting worse and the other illnesses like your self I think they come as a package , I've also in the past 3 years been diagnosed with chronic kidney disease, where that one came from I haven't got a clue I can't drink because of my meds.

Before the carcrash I went from a hard working single mother of 3 beautiful sons to being dependent on them and there families , and I cannot thank them enough, I would have to get someone to care for me other wise

[RIBBONPINK in reply to marg54]

HI IHAVE CYSTS IN KIDNEYS AND LIVER.ON ANTIBIOTICS EVERY NIGHT.I GET SUCH PAIN IN MY LOWER BACK.MY FIBRO STARTED AFTER ARTHRITIS MY LEGS GAVE WAY AND FELL BACKWARDS ON TO BATH TAPS AND BROKE SOME RIBS,THAT TRIGGERED THE DAM THING OFF.