Fibromyalgia

[Bumtee]

Hello all, my name is Bunmi, I have be suffering from chronic pain condition since May, after all tests and X-rays were done , it was concluded to be fibromyalgia. I am on a whole range of pain killers and don't think they help. sleep is difficult and I am finding it difficult to cope with everyday life. I have three young girls age 6 -10yrs .

is there any coping mechanism to help with this unbearable pain.

I am having this vey burning and painful feeling in my shoulders and the muscles of my arm,and i don't have strenght in my hands. i just want to know if anyone suffers this and what remedy helps.

Also is there any group in Lewisham area. Thanks all

[Trikki]

Hello.....I cannot help with support group in Lewisham but maybe if you type into search engine Fibro Support Group in Lewisham it should come up with one. How you cope with 3 little daughters I don't know, I am full of admiration.. I think we have all been through the gamut of pain meds until we find one which helps....Have you spoken recently with your GP about how you feel? I wish you more relief and gentle hugs x

[Bumtee in reply to Trikki]

Thanks for your support Trikki, really hope to find pain killers that helps ...will check on line for support group around my area ,...cheers

[Sandy254 in reply to Bumtee]

Hi I have fibromyalgia osteoporosis and now rhematoid arthritis I have good and bad days my body was so sore and painful my doctor increased my pregablin to 150mgin morning same at night it has helped I take paracetamol in between I loved to dance but afterwards I was in bed couldn't move I've just had bad chest infection which didn't help depression gets me down but I'm coping best has I can I do hope you all cope ok my doctor is young he understands more than last doctor sorry this is to long take care everyone xxxx

[Keithotoole]

Hi there is really no coping mechanism. You have to find a pain killers that suits you. But I have found they only take the edge off. It's a case of trial error. As for the kids. I have my 12 year old grandson living with us. I sat him down and explained all about fibro.he checked on line about it and he has been a great help to me. Kids are more resilient than you think. I help when I can with his boxing but because he has some understanding of fibro he now asks can I help him if not he's fine. It's worth being honest to everybody how you feel and what fibromyalgia is. Show everyone this site. Good luck.

[Bumtee in reply to Keithotoole]

Thanks Keithotoole, I had my 10 yr old read about my condition too, she's been ever so sympathetic.. my 8 and 6yrs old just know mummy's body aches... Cheers!

[Trikki]

My Granddaughters know that Nana has achy bones and cannot do a lot at times...they are coming after school today to carry on making their Christmas gifts for Mummy and Daddy......got to the messy bit now but I love it!! xx

[bluebell99]

Bumtee Hi, I see this is your first post, so welcome to our friendly site. Here you will find advice, support and information with the odd chuckle to lighten the day.

Have you visited our mother site fmauk.org ?

There is no one coping mechanism as such and what might suit one person may not suit another. However the most useful advice we fibromites can give is pacing, If you google the "Spoon Therapy" you will get some idea of this.

With young daughters I am guessing you are a busy mum, but sometimes you need to take a step back and look critically at what you do each day and how you can help yourself, like sharing the school run, or not doing the ironing in one hit.

Wishing you a better day tomorrow

Kay

[Bumtee in reply to bluebell99]

Thanks for your advice bluebell99.

[cespinosa]

Hello Bumtee.welcome to the forum.i see you have been given some good advice by some good people!☺I have pain in my shoulders also my neck.just recently I had lidocaine injection in my shoulders and after a few days found significant relief! I know it's temporary but for me worth it. Take care! Chris

[Bumtee in reply to cespinosa]

Thanks Cespinosa, I really hope your relief last a while.

[TheAuthor]

Hi Bumtee

Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to the FMA UK cache on support groups, so I sincerely hope that you can find a suitable group:

fmauk.org/contactsmenu/supp...

As the others have intimated, there is not really any one way to help yourself. It is quite often a case of trial and error with medication and alternative therapies. I want to genuinely wish you all the best of luck, and please take care of yourself.

Al my hopes and dreams for you

Ken