Hi people....any advice for my restle... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,416 members66,469 posts

Hi people....any advice for my restless legs and sleepless nights...ami makes me cotton wool headed the next day..I'm on 30/50 ccmol x8 day

Bearess profile image
8 Replies

I desperately need a good nights sleep....I went to the physio last Friday and he said he couldn't treat me as I was in pain everywhere.....he looked at me as though I was wasting his time..he was totally ignorant about fibromyalgia or he simply doesn't believe it exists :-(

Written by
Bearess profile image
Bearess
To view profiles and participate in discussions please or .
Read more about...
8 Replies
tulips123 profile image
tulips123

I dont have this restless legs (sounds awful), but I do get periods of sleepless nights/days.

I have zopiclone which works well for me. I have a lot of pain killers + amitriptyline, but after long term use it looses it's sedation quality, so it's the Zopiclone that I rely on for sleep.

There are so many different ones now, That physio, just plain ignorant, if you get on better with your gp, probably the best person to talk to.

I hope you get something more effective asap. I'm a wreck without my sleep! xx

netty55 profile image
netty55

Hi Bearess. I've had fibro for many yrs now an suffered many a sleepless night. I have found now that if I take my fluoxetine (amytriptine replacement) and an antihistamine at night I don't have such severe restless legs as I did before. I suggested this to my daughter who also has same prob and she said it's brill.

It might not work for everyone but it's certainly worth a try.

Good luck with it and I hope it works for you.

merlinmac profile image
merlinmac in reply to netty55

Hi netty55. I get the restless legs terrible and have recently been put on fluoxetine getting side effects but some going away been taking it in am is it better to take at night? Had so many antidepressants over years and now I think stuck. Hope you can help merlinmac

rushbrook86 profile image
rushbrook86

I was found to have restless legs at papworth when I was being assed for sleep apnoea all wired up and I was put on low dose pramipexole I live alone how do I know it works I do not kick duvet off buy the way pramipexole is used to treat parkingsons it works on the eldopia part of the brain if you have problems with GP asked to be assessed at a sleep centre good luck

Bearess profile image
Bearess

Thank you so much for the replies...I will go and speak to my g.p. When I get enough energy...cheers

netty55 profile image
netty55

Hi merlinmac. I take fluoxetine around 7pm with antihistamine (usual 1 a day type). By the time I go to bed I'm bit more relaxed so pills more effective. Might not work that way for everyone tho.

missymoo123 profile image
missymoo123

My morphine medication helps my restless legs.. restless body. Oramorph.

Bearess profile image
Bearess

Thank you very much / I'm in bed now - twitching away :-(

You may also like...

ive only ever seen a rheumatologist once 2 years ago, is this normal?

in his letter to gp he said he wouldnt need to see me regulary? but i see on here lots of people see

How do your other Halfs cope with your illnesses?

hated seeing me in pain. Once I was getting help at the Hospital he left me. He said he felt like...

Dreaded conversation from my boyfriend

Pip shameful practices

My husband just came in from work very upset as his work college was off work due to a massive heart

My application for the disablement benefit

the local councillor he said he has looked into it and even though i i need one he cant make my...