fentanyl: hi just wondered if any one... - Fibromyalgia Acti...

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fentanyl

debz66 profile image
12 Replies

hi just wondered if any one else has tried the fentanly transdemal patch, my dr put me on this as well as my pregabilin and tramadol. they also gave me promethizine to help me sleep . so just wondering if this works, i have it for ostio in hips and fibro xx

also my friend has numbness in her kegs and she said its going up in to her back and she wonders if any other fibro sufferer has had this, she has no acess to a computer

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debz66
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12 Replies
Sthandra profile image
Sthandra

Hi Debz66 I am on Fentynl patches and naproxen and amitryptoline also on oromoph which seem to be working for me, as to the numbness your friend has I personally have only had that in my hand but it comes and goes I had carpel tunnel in my wrists at the time which seems to be returning, does your friend have axcess to a Iphone, I use my BlackBerry cos oh is always on our comp, gentle hugs. Sithy

Lucyw profile image
Lucyw in reply toSthandra

I am desperate for stronger pain relief. I take Zapain which is paracetamol and codeine together diazepam but it never takes the pain completely away.

I want my GP to give me orimorph but he won't. Every single day I suffer with pain, someone please help me

Sthandra profile image
Sthandra in reply toLucyw

Only thing I can say about your Dr is to keep asking or see another GP if you can you may have better luck with them sorry your hurting as you can tell I'm having a lousy night to,gentle hugs. Sithy

tulips123 profile image
tulips123

I've recently started on these after developing allergic reaction to the butrans patches. They very quickly made a real difference, in that I can do more, generally feel better.

Your friend? I think she should see a dr. I have similar symptoms, but it has just occurred to me may not be just fm, could be related to badly controlled diabetes, or fluid retention, or 1,001 other conditions!

wolvesguy profile image
wolvesguy

hi there im new to this site but i read your comment on fentanyl patches im on those patches im on the 75mg patch they great for pain relief but the only problem i have with them is that everytime i change my patch im awake all night i dont sleep that good but to spend the whole night awake is that it drains me totaly if this is just me i would like to know if anyone else has the same prob

Ryleedog profile image
Ryleedog in reply towolvesguy

I was on the patch for 8yrs just went off 100 mg as i was back in pain. The patches take 24 hrs to work i would cleave rhe ild one on till the new one kicked in. Dont know if this wascorrect way but did work for me. Am on dilidid now not really doingthejob my quality of life is lower also just had 3 surgeries mainly preferred bowel which has keft mewith a colestomy bag fun fun very depressed almost died wasin a coma for4 days. Its struggle sometumes i wonder. Surgeon feels tbe duragesic patch did this to me i wishi knew

pinot profile image
pinot

why wont gps prescribe fentanyl patches every gp in my surgery say no ????

debz66 profile image
debz66

i had to stop the patch ,they were fab for pain relief but the side effects were awful i was sick,dizzy ,sleeping all the time an ditching . shame as they are just what i needed.

i will tell my friend that a lot of people dont have the numbness in the legs .ty xx

kennethcooke profile image
kennethcooke

Please Please Please DO NOT even consider. Any GP that prescribes it for anything under end of life should be struck off. I was on Fentanyl 50mg for 5 years. It took the whole of last winter to withdraw slowly using Oramorph to help the withdrawal. Then I had to withdraw from the Oramorph.

You are drip feeding yourself Heroin when you put Fentanyl patches on- Regards Kenneth UK

NilsAjax profile image
NilsAjax in reply tokennethcooke

I was on the 100mg patch for many years, and it gave me a quality of life that no other analgesia came close to... every patient is different, and saying GP's who prescribe transdermal Fentanyl (TDF) to anyone not already dying should be struck off, is a massive overreaction and entirely inappropriate.

Perhaps you were not right for this therapy, perhaps you abused it somehow, perhaps you inadvertently did not use it correctly, perhaps none or all of these; who knows. Clearly, though, it was not right for YOU... However, YOU are not the only person in the world... TDF is a pain therapy, that when used properly and in the right circumstances, is an absolute godsend to millions of pain sufferers.

Heroin is an illicit drug that has ZERO therapeutic uses, whereas analgesic opioids have myriad well documented, peer reviewed therapeutic uses... saying TDF is the same as drip-feeding yourself heroin is disgraceful, as is saying prescribers should be struck-off.

My quality of life without it, would have been somewhere below that of dog poo for many years; with it, I was able to function - not entirely normally, but essentially with such reduced pain, that it approached a level of normality that was acceptable. My doctor is a caring, patient-focused professional, with nothing but the utmost empathy and application of care for his patients… saying he should be struck-off for helping me, and those like me, is nothing short of disgusting, unhelpful and inappropriate.

TDF is definitely not for everyone, and it definitely has its dangers and drawbacks like every powerful chemical therapy does, but when used properly, under proper supervision, and in the right circumstances, it can be a game changer for many people whose life is blighted by chronic pain... Your post is just wrong; wrong, I tell ya, and it made me as mad as a chip!

debz66 profile image
debz66

Hi have you the same profile as me ? As I didn't write this

Milliemog profile image
Milliemog

I have fibromyalgia and about 4 years ago everywhere I got bad pain I went numb, not deep but it felt weird. I now only have a few patches that I can still feel. The worst being my lips.. Doctors can't tell me why or do anything for me. Anything they can't cure with a pill they give up on, or so it seems.

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