Right down on the floor

[jillylin]

I finally hit the floor, or maybe it is the bottom of a deep pit. I am so frustrated that I can't physically do what I want any more. My brain refuses to stay clear and I am so fed up with myself I don't even know who I am these days. I am sick and tired of there being no answers and no help from the medical experts. It's fibromyalgia, here is a leaflet about it, good bye.

Sorry, I just needed to vent. I know we are all in the same boat and you all sound a whole lot worse off than me but I just can't do this at moment.

[ladymoth]

Hi jillylin,

I guess most of us identify with how you feel, but it does pass.

The medical profession can do very little for us, but with experience you do manage to become your own doctor.

Personally I find that brain fog directly relates to pain and exhaustion, so if you can organise some decent pain relief (doctors CAN help with that) and take sufficient rest, then things improve considerably.

The amount of rest you need will be individual to you, but you must resist the temptation to overdo it when you have a better day. You also have to resist the temptation to lie down all day when you feel really bad - it's essential to exercise a little, no matter how ill you feel. Ten minutes gentle stroll in the fresh air will always help.

Together with eating as healthy a diet as possible, by taking care, you should manage to reduce your distress to a manageable level.

I hope you feel better soon

Moffy x

[jillylin in reply to ladymoth]

Hi Moffy,

thanks for your reply. I admit I have a big problem with pacing. I do ok for a few days, feel better then plough back in and end up back at square one. I am so frustrated with myself and with the fact I am stuck in a trap weigh no way out...or that's how it seems anyway right now

Hugs

Jillyxx

[Hidden]

Well I was just going to type the same almost as moffy.... I don't know what meds you are on but an effective antidepressant works wonders.... I had to try four...

After 23 years I am now settled into a routine of pain management I have refused to try new meds as so many have upset me .. So my GP lets me have what suits and keeps the pain level at a bearable level and I changed my diet to cutting out junk and pace and its manageable.... It's not an exciting life its not what I imagined I would be doing in my 40s but it is still enjoyable

Vg x

[jillylin]

HI VG,

I am on anti depressants but after an improvement for a while it is all going pearshaped again. I have a new GP who I have seen once and just don't feel that she will be much help. She tells me she believes it when people tell her they are in pain but just how pro active she will be with pain management remains to be seen. I know I am feeling very negative about it all right now which isn't helping. Sorry, marjor whining here, I know

Hugs

Jillyxx