Diagnosed with APS

[Mercury363]

After all the transfers, surgeries and treatment i have been diagnosed with APS.I am still waiting for a proper chat with my own gp but have had a referral to rheumatology. This obviously explains my hydroxichloriquine, prednisone and need to tacrolimus in my transfers but there isn't much information online about how this is managed outside of ivf for fertility.

Has anyone been diagnosed with this and had a natural bfp? What treatment or meds did you take?

At least I have one factor as to why I can't get pregnant naturally (could of course be many and others) but this feels like a course I can follow even though our ivf run is finished. Any advice?

[Endofitall]

I am so sorry it’s taken so long for you to get some answers and that you can’t now take this into further IVF. I would be very angry and upset about that.

Can I ask how you’ve been diagnosed? I have positive Cardiolipin antibodies on two samples 12 weeks apart but I’ve been told because I haven’t had a blood clot (DVT/PE) or 3 miscarriages (I have had one miscarriage, and recurrent implantation failure, as well as an ectopic pregnancy but that’s by the by I guess for this) I don’t meet the definition of APS? I do have other autoimmune conditions too (coeliac, thyroid, as well as endo and asthma/eczema/allergic rhinitis).

I now get prescribed Clexane 40mg from a positive test when trying naturally or from post egg collection in a IVF cycle. When we conceived naturally it was sadly ectopic but I don’t think that’s the antiphospholipid antibodies fault.

Really hope you get some answers soon xx