Severe scarring found in hysteroscopy after d&c- any tips on recovery?

[Daisy-Delilah]

Hi everyone,

I had a hysteroscopy at the weekend and despite being told it’s unlikely the doctor found severe scarring in the womb entrance and inside my womb. He said it would have been a result of the d&c I had this time last year after a MMC 😢

So for the last year trying for a sibling I’ve been transferring my precious embryos with little chance of them being able to implant 😢

In some ways I guess it’s good that they found a reason for the chemicals and the failures but I’m just worried in case the tissue now doesn’t recover 😢

I just wondered if anyone else had been through this and had a success story or had any advice on recovery. My doctor has given me oestrogen tablets to take for a month.

Thanks and good luck to everyone 💕🤞🏻

xxx

[Pos1tivelybaby]

I’m so sorry to hear that.

I’m in a similar situation - I found out I have scarring in my uterus from a D&C I had for a missed miscarriage at 12 weeks. This was 4 years ago and would explain why I wasn’t getting pregnant despite years of trying naturally and 2 failed transfers.

My clinic advised to get the scarring removed to successfully get pregnant. So I had a hysteroscopy to remove the scarring, But because a biopsy showed pre-cancerous cells, they put a mirena coil in to correct the hormonal imbalance and I have to have 2 clear biopsies in a 12 month period before we can try again.

No success story yet but the advice from the doctors I saw was to get the scarring removed. Good luck xx

[Daisy-Delilah in reply to Pos1tivelybaby]

Hello,

Thank you for taking the time to respond to me. I’m sorry you are having such a difficult time 😢

I really hope you get your two clear biopsies soon 🤞🏻

Xxx

[Natasha2012]

sorry to hear this . Can I ask if your baseline ultrasound scan showed anything ? My clinic are telling me I look fine but I’m not convinced . I have had c sections . X

[Daisy-Delilah]

Thank you.

My understanding is that you can’t see scarring on an ultrasound scan.

I must have had at least 12 scans at various stages last year where my lining looked really good, 8+ trimlaminar at times but this wasn’t picked up.

It can be that you have scar tissue in one area and not another as well. I’ve previously had a c section and also a d&c after MMC. The tissue was good in some areas but not others and not over the womb entrance.

We nearly didn’t have the hysteroscopy done because the lining had looked so good on the scan and both c section and d&c are low risk (although some risk) procedures to cause scarring. Turns out I was one of the unlucky ones 😢

Have you had a hysteroscopy done before? X

[Natasha2012 in reply to Daisy-Delilah]

No I haven’t . But I just cant get pregnant , could do easily before . Really annoys me as I trusted the clinic when they said I was fine . Two failed transfers now . Do you think a saline scan would show it up ? Xx

[Natasha2012 in reply to Daisy-Delilah]

I have no idea where to get a Hysteroscopy done either , I’m seeing Adrian lower in a few weeks so hopefully he can help x

[Daisy-Delilah in reply to Natasha2012]

I imagine on the scan everything does look fine. So I don’t think they would be lying to you, they just think it looks fine with the limitations of an ultrasound.

I’ve looked at Adrian lowers website and it looks like he offers hysteroscopy so hopefully he can help you. X

[Natasha2012 in reply to Daisy-Delilah]

He hopefully can , it does upset me however as I told them my concerns and they actually told me it wasn’t worth having a saline scan as my ultrasound looked perfect . IVF clinics don’t make their money from investigations though , only transferring embryos 😩 it’s a step forward for you in finding out why you haven’t been successful and I can only hope for the same ❤️ xxxx

[JoleneR]

I'm sorry to hear you are in this position. The news must have taken you completely off guard (as if we don't have enough to worry about with IVF).

I'm afraid I don't have any advice for healing. I am guessing the scar tissue was removed during the hysteroscopy?

I had a D&C at 7 weeks last year, and now seriously wondering if I should have a hysteroscopy before starting my donor egg treatment. Can I ask what stage your D&C was?

[Daisy-Delilah in reply to JoleneR]

Hi Jolene,

Thanks for your message. And I’m sorry for your loss last year.

Yeah it was a definite shock to wake up and be told about it 😢

I was told that the risk of scarring was low but it does happen as unfortunately I’ve proved.

I was 6w4d when I found out that there was an empty sac, I think I was about 7-8 weeks when they decided it was definitely a non-viable pregnancy 😢 after two failed medical managements I had no other option than to have the d&c at about 10-12 weeks.

I’m so pleased I had it done as we nearly didn’t as I was told it’s so unlikely that the d&c has caused an issue! Fortunately I managed to get it covered on my private medical insurance.

Pm me if you have any other questions.

Xxx

[Backagain987]

I had a lot of scar tissue, I had had 3 x surgical management but the majority of my scar tissue came from a lot of fibroids and the surgery to treat. It was picked up on a 3d ultrasound scan (as opposed to a normal one).

My scarring was so all over the place they didn't suggest trying to fix it. I wonder if it's a difference between 'scar tissue' and 'scarring'. Anyway I am a good news story, I got pregnant (despite not treating my scarring) and now have a 10 month old. I did however have issues with my pregnancy where the placenta got stuck to the scar tissue and I ended up having a massive bleed on delivery.. luckily it was expected and I was in a specialist hospital. I was ok in the end though! xx

[Daisy-Delilah in reply to Backagain987]

Thanks for taking the time to reply. Many congratulations on being a success story ❤️

That’s interesting that they didn’t try to fix it. Did they do anything or give you any treatment?

Thank you xxx

[Backagain987 in reply to Daisy-Delilah]

I think it was so far reaching it would have risked even more scarring and by that point I had had 5 operations. They didn’t do anything differently except assisted hatching of the embryo.

[Natasha2012 in reply to Backagain987]

Congratulations , I think they must have thought going in would have been potentially more harmful than leaving it ? I am annoyed I haven’t had a 3d scan yet . My clinic really don’t want to give me one , makes me wonder if they just want me to keep paying for transfers . Is a saline scan a 3d scan ? Sorry if I am being stupid 😂. I keep asking for one and they don’t want to do it ! I might have to wait til the 18th when I see Adrian lower . How long did it take you to fall pregnant ? Xx

[Backagain987 in reply to Natasha2012]

I am trying it remember what it was, it wasn’t a 3D SIS (I had one of those but it didn’t see the scarring). It was some sort of special ultrasound which showed things in a lot more detail than a normal one x

[Natasha2012]

part of me hopes there is something wrong as then I will know why we can’t get pregnant . I have booked in for a saline ultrasound on the 12th . Xxxx