Anyone developed a Pulmonary Embolism... - Fertility Network UK

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Anyone developed a Pulmonary Embolism while stimming?

Fairsy2021 profile image
7 Replies

So I am just out of hospital after suffering severe hyper stimulation syndrome after my egg collection last week, which also left me with a PE and pleural effusion!

Just wondered if anyone else had had this happen? I’m now on blood thinners for 4 months and when I have FET in the new year, will have to be on Clexane to prevent any further clots while pregnant.

Just all seems a little scary! And wondered if anyone in a similar boat?

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Fairsy2021
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7 Replies
RecipIVF profile image
RecipIVF

I haven’t been in your situation so can’t help any but just wanted to wish you all the best, that must have been terrifying. Take care xx

Fairsy2021 profile image
Fairsy2021 in reply to RecipIVF

Thanks so much x it was pretty scary. We all do so much for our ‘journeys’, don’t we. We are all certainly brave xx

Efa2 profile image
Efa2

Hi Fairsy2021, so sorry to hear you are going through this. I hope you are starting to feel on the mend! May I ask what dose of stims had they put you on? I have recently been through egg collection process which also resulted in OHSS and hospitalisation. It was quite a scary experience as my signs and symptoms resembled that of a stroke but I learned it was due to too high a dose of ovaleap. Although everyone reacts differently. What I will say is that despite the hard acceptance at the time that its going to be a freeze all cycle your health is so much more important and even though it means a delay in getting to do a transfer you will get there! I wonder if you would be up for bring FET buddies as I have a feeling we will probably be going through it at a similar time. Sending you positive vibes xx

Fairsy2021 profile image
Fairsy2021 in reply to Efa2

Hi there, thanks for messaging. I am starting to perk up now. I’ve just finished the worlds most hideous bleed (the thinners made this even better than a post stims bleed!) but that’s all helped my hormones drop, which I needed. I’m sorry to hear you’ve been hospitalised too. How are you feeling? I was severe ohss and I’m certainly feeling better. I was treated with cabergoline and fyremadel to help too - did they give you anything? I really hope you’re feeling brighter - ohss really sucks.

Yes, I know what you mean. I’ve shed some tears over the delay for Fet - especially as we would of been due for our lost baby in March tomorrow, but I know this is for the best. When I logically think about it- our bodies have just been through hell, and to add another possible pregnancy or loss, would be way too much to handle right now. So yes, let’s buddy up for January. I’m hopeful that’s when they will see me. I have to be managed by anticoagulant team now, so I’m hoping nothing is an issue with all that come January. I have to finish the rivaroxiban I’m on before being allowed to try again. Hope you got a few into the freezer? Out of 22 eggs (i donated half) we ended up with just one blast. But it’s joined one from previous , so we have 2 last chances awaiting us xx

Efa2 profile image
Efa2 in reply to Fairsy2021

I was on cabergoline as well as clexane. Glad to be out the other side of it now and feeling back to myself again. It dies take time though. Keeping my fingers and toes crossed for us both in the new year 🤞 it only takes one right!

DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK

Hi Fairsy. Oh dear, I'm so sorry to hear this. Could be due to high dose of stims?? You will have to see what your specialist says. Hopefully you will soon feel better, and thankfully they will have you covered with Clexane next cycle. Thinking of you. Diane

Fairsy2021 profile image
Fairsy2021 in reply to DianeArnold

Hi Diane. Thanks so much for your thoughts. They think my estraidol must of exploded over the day before collection. I did have ovidrel and buserilin, so was just a lot going on in there. The high oestrogen in my blood was the perfect storm for the clot. I’m just thankful we found it and I didn’t just sit at home and wait it out thinking it was just ohss. I Knew I wasn’t right, but some of the pain, I think we just suck up.Yes, I’m with an anticoagulant team now and I’m hopeful for that plan come January 🤞🏻 I’ve read good things about clexane in cycles, so maybe a little blessing in there somewhere ? 😊

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