Is a hysteroscopy really worth it?

[Maisie234]

I've been told to have a hysteroscopy and an array of immune tests to test for NK cells and more thyroid issues etc.. The tests are fine, but the hysteroscopy is coming in at over £2000 if I go private. I may be able to get it in the NHS but my clinic is abroad and will have to write a letter which may or may not help having the referral, for free, here in the UK. Even then it could be ages to wait what with the flipping c word (covid).

I genuinely think my problems are immune related.

Stupid question.?... But has anyone actually truly benefitted from a hysteroscopy? It seems like so much more money and I'm totally deflated and getting broke pretty quick!

[Orla9298]

I’d ask your GP to refer you if possible - maybe under recurrent miscarriage? You don’t quite meet the requirements but it’s worth a try? £2k is a lot! You do occasionally see people being diagnosed with fibroids or septum etc from a hysteroscopy. However looking at your post, (I’m really sorry about the empty sac), that doesn’t suggest it being a uterus issue rather that was probably an embryo issue with that particular embryo. Do you have more embryos waiting for transfer?xx

[Maisie234 in reply to Orla9298]

No embryos left and my last round was double donor so that's why they thought hysteroscopy now, and maybe there was some damage from the medical management I had in Feb.

I'm preferring not to not have it, it's so much money.

I agree about the problems being embryo issue and not uterus.

Thanks for your thoughts, it helps to have another perspective. 💞

[Orla9298 in reply to Maisie234]

It could be either or both... annoyingly until you rule out uterine issues you can’t fully be sure 😢 id still say get the clinic to write for you and see about your GP referring you, just in case there is a chance you can get it nhs.

What’s your next plan, are you planning To make more embryos?x

[Maisie234 in reply to Orla9298]

They are writing the letter for me now and I'll try with them. 🤞

I think a break over Xmas and then another donor cycle early next year.

I see you are having a big week. How are you feeling? X

[Orla9298 in reply to Maisie234]

That’s good to at least try and get a referral while you’re waiting to make more embryos. It must be expensive to do double donor, maybe let them take their time selecting the best donor for you for both?

I’m ok, I’m really nervous about the timing of this FET but keeping my fingers crossed for it. We are so desperate 💔

[Maisie234 in reply to Orla9298]

That's great advice. I agree, more time selecting the donors is definitely worthwhile.

Oh it's so so difficult. I had a wee read and I'm no expert but the surge in ovulation happens before actually ovulating? About 24hours before? So the date sounds right? I think from what I read that you are bang on. It's so nerve-wracking. You wonder how anyone is born at all with all the timings but I genuinely think you're ok. Xx

[Zebedee1971]

My gut feeling was that my chemical pregnancies were immune related... I had my nk cells tested and now I'm 6 weeks pregnant. Maybe do immunology first and if that comes back OK, go for the hysteroscopy?

[Maisie234 in reply to Zebedee1971]

That's a brilliant idea! Thank you for the advice.

I can't physically face more surgery either and the fact I did get pregnant suggests it might not be that important just now. 😬

Congratulations to you, that's great news!! 💞

[Orangeflowers]

Just a warning that waiting for a hysteroscopy on the NHS could take a long while. It delayed my treatment by a year - first one in Oct 19 for suspected polyp failed to identify and remove it. Changed NHS clinics and another booked for Feb 20, this was delayed due to clash with period (which you can't be on) until April, then cancelled due to covid. Back up and running and got it finally in September 20 and small polyp removed. Hysteriscopies may well be delayed or limited in NHS again as Trusts went into level 4 today. All the best with this. If I were you I'd join the list and go ahead anyway or get it done privately. £2k is better than the private quote for hysteroscopy I got which was £5k. Good luck for this one xx

[Maisie234 in reply to Orangeflowers]

Oh man, that's awful, you done well to get through all that.

I suspect it will take ages even if they say yes. It's good to know what I am getting into though. £5k is crazy, how do these places sleep at night. .

Good luck with your next round, I hope this is it for you 🤞 xx