Miscarriage, septate uterus, IVF, miscarriage

[Hopeful1986]

I am wondering if anyone else has a similar situation to myself. 3 years ago we began our journey with a natural pregnancy after only 4 months of trying. We miscarried that pregnancy after 6 weeks and my ob said although my uterus was misshaped it was bicornuate and didn't cause my mc. After a year of trying naturally, and 3 clomid cycles we got the referral to infertility where we found out via 3d us my uterus was septate and most certainly caused my mc. He said with surgery I should get pregnant no problem. I had two surgeries to correct still no natural pregnancies fast forward through 3 failed iuis and a failed fresh transfer we finally got pregnant with a frozen transfer in June, only to miscarry 7 weeks later. I am having a d&c to determine if this was an issue with the baby or myself.

Has anyone else experienced something similar? We didn't go pgs testing as we aren't genetic carriers for anything so I'm starting to think it may be an issue with my body rather then the baby.

[Hidden]

Hi, yes I am almost a mirror of you. 1 x MMC and SMM prior to IVF. TTC for years. Unexplained infertility. 1st IVF BFN, 2nd IVF BFP! heartbeat at 7 weeks, MMC at 9 weeks. SMM which didn't work - retained tissue - they couldn't workout why... I insisted on them using a camera the second surgery (after 4 weeks of continued BFPs) and they found I had a septum separating about 50% of my uterus. I then had further surgery in May to remove that septum and some scar tissue from the MC, I now allegedly have a completely round womb! Had 3rd IVF a few weeks ago and currently in 2ww and pretty sure it hasn't worked... Have been told its just luck and need to 'just keep trying' which is difficult when its privately funded and such a head ***** each round -even more so since the second MC. The only thing I have had is the blood tests which found I have sticky blood and lupus anticoagulant which I hoped would be reason for no implantation and MC but I am treating these with blood thinners and aspirin and still no sign of BFP so not really sure where to go next. Not sure that helps you but maybe get those bloods done? Masses of luck xx

[Hopeful1986 in reply to Hidden]

Hi Daisy, what does smm stand for? Its so frustrating isn't it? When I was first misdiagnosed with a bicornuate uterus I had asked my obgyn for a 3d ultrasound and she insisted it wouldn't be covered by insurance and it was bicornuate. I wasted a whole year trying when if I had actually gotten pregnant my risk of MC was 70%. My septum was also very large it was 13mm? Or cm? Anyways supposedly after two surgeries my womb is also round but with this second miscarriage I am worried that maybe some of it grew back. I really love and trust my doctor and he said well do miscarriage testing on me if the embryo was chromsonally normal. I am trying to be positive as well but I'm about to be 33 and nervous about this process continually being delayed.

When is your blood test? I hope this one stuck for you ♥️

[Hopeful1986 in reply to Hidden]

Hi Daisy. Just checking in. I just found out I may need a THIRD surgery bc doc thinks septum grew back a bit. Did you ever get your bfp?♥️

[Hidden in reply to Hopeful1986]

Oh no so sorry to hear that but kind of good that they are on top of things and keeping an eye on you.

Got another BFP but had another very early MC (5+5) so taking a break from things for a month or so. Am ok though! Enjoying wine and eating what I want

Good luck with surgery - keep me updated xx

[Hidden]

So sorry to read this - I wish things could have happened faster for you. I am 42 so definitely running out of time now.

They didn’t offer me chromosomal testing so great that you are getting that. Have you had the repeat Mc bloods done?

SMM - surgical management miscarriage

My clinic don’t do bloods but give you a test - it’s Sunday. I did one today at 8dp3dt and it’s negative and on my successful round I had a clear bfp by today so assuming it’s failed which I am beyond gutted about! x

[Hopeful1986 in reply to Hidden]

Not yet. This is my second pregnancy/miscarriage over the past three years and the first one was said to be due to my uterus. After the d&c we will do repeat miscarriage testing.

[Fingerscrossed38]

Gosh so sorry you've been through this awful rollercoaster.

I can't help with much but pgs testing isn't only for people who are known carriers. That is more pgd testing whereby they can determine if an embryo is carrying a specific chromosomal defect. I recommend getting pgs testing done next time just so you can eliminate the reason for any (god forbid) future losses and know it's not chromosomal. Hope that helps. Best of luck with it all xx

[Hopeful1986 in reply to Fingerscrossed38]

Thanks for the reply! If the d&c shows there was an abnormality then we will do the pgs testing. Honestly I think we might do it anyways but it isn't covered by insurance so it will be an extra $6000 but like you said I'd rather be at ease and not have another loss. Best of luck to you and your journey as well

[Fingerscrossed38 in reply to Hopeful1986]

Yes I am in the same boat. Even though pgs testing is crazy expensive and we are self funding it is worth it to eliminate the most probable cause and hopefully try to avoid another miscarriage. Best of luck

[Hopeful1986 in reply to Fingerscrossed38]

I completely agree. Where are you guys in your journey?

[Fingerscrossed38 in reply to Hopeful1986]

We had our first ever egg retrieval and pgs tested 9 5 & 6 day blastocyst and 6 came back normal! Thrilled with that number since I turn 39 in August. Doing our first FET in 3 weeks or so hopefully.

[Hopeful1986 in reply to Fingerscrossed38]

That's great news!! Look into castor oil packs (there's YouTube videos) it helps prep your uterine lining for transfer.

[Fingerscrossed38 in reply to Hopeful1986]

Oh really? Never heard of this. I'll look into it today. Many thanks. I've not really done anything to prepare myself for transfer. I need to lose weight though!

[Hopeful1986 in reply to Fingerscrossed38]

Plenty of people who have weight to loose get pregnant.. dont beat yourself up over it!! Keep me posted ♥️

[Frussy]

I do have my uterus in a heart shape ( bicornuate) but my doctor said is not a risk of miscarriage, never been pregnant, had 2 ectopics in the past ( blocked tubes) 2 fresh 1 frozen transfers failed

[Hopeful1986 in reply to Frussy]

Hey Frussy, that's right a bicornuate uterus won't cause a miscarriage, you're only more at risk for early delivery as there's less room in your uterus for the baby to grow. That can be solved with a little stitch on your cervix. I am so sorry for all your failed transfers. I hope the next one works for you♥️