Septate uterus diagnosis

[Still_hopeful_88]

Hi all, new to this but thought I’d give it a try. Is anyone out there living with septate uterus diagnosis? Have you had successful surgery to remove the septum? It seems so rare I’m struggling to find anyone who ‘gets’ what this feels like. Would love to hear from people with similar experiences. Xoxo

[LegoBatgirl]

Sorry I don't have it but just wanted to say good luck with your search and if you ever need to talk to someone then drop me a PM. You're not alone even if your diagnosis is rare the ladies here are always happy to try to help x

[Still_hopeful_88 in reply to LegoBatgirl]

Thanks for reaching out. I’m not entirely sure how to PM on here. Brand new on this! Any tips? How’s your journey going? It’s a tough going this infertility stuff eh.

[LegoBatgirl in reply to Still_hopeful_88]

I still feel like I haven't really started! We've had our diagnosis and are starting IVF in September but I know that there is a long road to go.

It is tough but it's easier with support

[Lizzielizzielizzie]

My friend had successful surgery after one miscarriage and one very prem baby who only survived 9 days. She went on to have two successful pregnancies and they are now a happy family of four. I don’t think she has any regrets about having the surgery x

[Still_hopeful_88 in reply to Lizzielizzielizzie]

Great to hear a success story, it’s reassuring. I’m waiting on a referral from my local hospital to the city hospital to see top level consultant as so specialised. So feel like I’m in limbo till I hear from him direct. Just worried that it’s so bad they won’t be able to fix it. I suppose we all have our anxiety going through this journey eh.

[Lizzielizzielizzie in reply to Still_hopeful_88]

It’s bound to be worrying but you are on the right path, at least you have a diagnosis and hopefully a solution is on the way xx

[Hidden]

I was initially diagnosed as septate after initial pelvic ultrasound, but then when I had a pelvic MRI a different specialist concluded it was only “heart shaped” ie no septum which is much better. I seem to get a lot of different information from different people in the process, just sharing in case it’s helpful, not trying to create unnecessary hopes, but if I was going back in time I would have asked them to show me the images for my own sanity. Best of luck!

[Still_hopeful_88 in reply to Hidden]

Ah, my diagnosis has been the other way around. I had an ultrasound 3 years ago to check for PCOS and they debated whether heart shaped or septate. Because I wasn’t trying then they refused to investigate further. Since then I’ve had all sorts of investigations including early menopause and endometriosis as a diagnosis for my infertility. In the last year they thought I had a blockage in my Fallopian tube so had a laparoscopy in May. It wasn’t until then that they realise it was septate rather than “heart”. I’ve since been for an MRI and getting sent on to another more specialised consultant with the hope he’ll be able to operate and “fix me”. I still like to keep positive but as you say so many different stories out there it’s hard. X

[Hidden]

They made operating to remove the septum sound much more simple than I was expecting when they thought that’s what my problem was, so fingers crossed it is straightforward. Yep, I’m with you - so many tests!! I have endometriosis, and with a few other negatives the recommendation is on to IVF. Still getting used to how it feels to have had it spelled out (no funding in my area).

[Still_hopeful_88 in reply to Hidden]

I was expecting one operation but after speaking to the consultant at my local hospital she said it could take up to three attempts to remove it completely which was a bit of a blow. Wish I pushed to have it investigated fully 3 years ago. I have endometriosis as well but scarring is old so not doing anything. I can’t believe the postcode lottery in England. Are you able to go private? It’s so frustrating and unfair sometimes.

[Gillyc1]

My niece has this. She unfortunately had a prem baby at 24 weeks but now has a healthy 7 week old little girl so don’t loose hope xx

[Still_hopeful_88 in reply to Gillyc1]

Thanks @gillyc1. Did she have an operation to remove it or did it all happen naturally? X

[Gillyc1 in reply to Still_hopeful_88]

It all just happened naturally. She bled quite heavily most of the time but they just kept an eye on things. She got to 35 weeks then went into labour xx