Since IVF cycle I have been in pain - Fertility Network UK

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Since IVF cycle I have been in pain

Minchoo profile image
11 Replies

Hey

I had two failed cycles and since my second one I developed a severe infection which had me in hospital for 6 days. It’s now been some 23 days since EC yet I am still in pain.

I have endometriosis- not sure what stage but it’s like to be stage III or IV.

Since my infection - particularly the last two weeks, I have been in pain every day.

They have told me to manage it at home with pain killers, until I have my lap - which I am on a waiting list for.

Not sure how to manage pain, I have lost my work as a result - and are taking paracetamol around the clock with the occasional codeine.

I only felt pain due to my endometriosis initially and even then I wasn’t diagnosed for up to 1.5 years. Since my infection I feel everything. It feels absolutely awful. I cannot leave the house, I need heat on me constantly. I feel really debilitated and down right miserable.

I also had Zoladex upon discharge and not sure if this is helping endo or contributing to the pain.

Just feel miserable and awful.

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Minchoo profile image
Minchoo
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11 Replies
WaywardGirl profile image
WaywardGirl

Hi. I am also an endo sufferer and it can be unbelievably painful. I found co-codamol helped more than just paracetamol (I think the two work together better if taken at the same time).

I was put on Zoladex after an investigative laparoscopy and it made the pain much, much worse initially (for a few weeks) but after that it was brilliant and I managed to train for and run 2 marathons last year.

Stick with the Zoladex and it should ease - I’d say if it’s not better 4-6 weeks after the first implant then try to see your endo consultant.

Hang in there x

Minchoo profile image
Minchoo in reply toWaywardGirl

Thanks Wayward, I am trying. I think I am at week 2 on Zoladex and I can feel every twinge and pain of my endo. The fertility clinic kept wondering why I couldn’t feel my endo and how I was going about a normal life. Well I can certainly feel it now!!! Awesome news about running a marathon. I want to get fit too, but once this pain stops. If it stops!!! Will read the rest of your posts for inspiration. I just feel in a bad place at the moment!

WaywardGirl profile image
WaywardGirl in reply toMinchoo

Hang in there - I know it feels like the pain will never go, but it will x

Minchoo profile image
Minchoo in reply toWaywardGirl

Thanks lovely ❤️😘

Autumnmoon profile image
Autumnmoon in reply toWaywardGirl

Just checking you are not taking co-codamol and paracetamol at the same time as there is also paracetamol in co-codamol So would be too high a dose all my sympathy with the pain though x

WaywardGirl profile image
WaywardGirl in reply toAutumnmoon

Yes - re-reading my post it sounds like I meant that but I meant the mix in cocodamol works better than alternating paracetamol and codeine

Sezvic profile image
Sezvic

Hi Minchoo, I got severe endometriosis (stage 4). When the pain is bad the only thing that help is naproxen 500mg. After that I top it up with cocodamol. I don’t like taking naproxen a lot. I take it only once to put the inflammation under control and then try to control the pain with cocodamol. As cocodamol can cause constipation, I try to eat a lot of fruits and vegetables. And then I take fybrogel. Otherwise if I get constipated, it just make my pain worst. I have been changing my diet, I’m trying the gluten free diet. I feel much better especially I feel less bloated. I hope you feel better soon. Take care.xxx

Minchoo profile image
Minchoo in reply toSezvic

Yes thinking of going gluten free. But last time I tried that, my stomach ached - how odd! I don’t eat that much wheat. But will definitely bar it more now. Thanks will defo try the cocodamol combo with more fibre. It’s pretty much what I am taking. It does help but I don’t want to be reliant on drugs. Here’s hoping the Zoladex does what it needs and the pain stops! Thanks guys you always make me feel good. Glad to know I am not alone xx

Autumnmoon profile image
Autumnmoon

I think you should see your doctor if the pain is not lessening it should be investigated further hope you feel better soon x

Minchoo profile image
Minchoo in reply toAutumnmoon

Thank you, I have GP appointment and now I have a call from a fertility doctor and have a cancellation appointment. So will see what they say and if they can do anything about this constant pain.

Minchoo profile image
Minchoo

Back in hospital due to flared PID again. Waiting on a ultrasound scan and CT scan. Then potentially surgery.

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