Hydrosalpinx?: Hi Has anyone on here... - Fertility Network UK

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Hydrosalpinx?

16 Replies

Hi

Has anyone on here had any experience of being diagnosed with or having treatment for a hydrosalpinx? Went for my scan today and they think I might have one. I am waiting to hear back from the clinic in Spain to understand what it means but wondered if anyone else had anything they can share?

Cx

16 Replies
genten profile image
genten

Hi, I was diagnosed with this on Monday at my first scan on day 8 of stims. Because I had already started on medication I kept going through to egg collection which was this morning. Any eggs that fertilize will be freezed until I can have op. I've decided to have my tubes clipped as my tubes are also blocked and I will have the op in next few months. The hydrosalpinx is a toxic fluid that 'sloshes' around tubes and uterus and can decrease the chance of becoming pregnant as the fluid can kill an embryo (that's what my clinic have advised me).

The hydrosalpinx wasn't really present today but it does 'slosh' around the tubes and uterus. Your clinic should give you the best advice for your case.

Wishing you lots of luck xx

in reply togenten

Thank you so much Genten. Good to know x

genten profile image
genten in reply to

You're very welcome ☺. You'll be fine, best to see what your clinic advise for you. As I said, best of luck, you'll be fine xx

Sorry lovely never heard of this but just wanted to send you a big hug and wish you all the best getting it sorted. Sometimes the hurdles seem to keep getting in the way but hopefully it will be resolved soon. Xxx

in reply to

Thank you snuggles. Xx

lucyC1987 profile image
lucyC1987

Hi

I was diagnosed with this in October last year. We had been TTC for a while and been having problems so referred for an ultrasound which found what they thought was a cyst so I was referred to the fertility clinic who did an internal ultrasound and confirmed fluid on my tube ie. Hydrosalpinx. I googled so much when I found out and got myself in a state eventually bringing myself round to having to need IVF. I had a follow up with the consultant a few weeks later who said it would be best to take the tube out as they could drain it but there is a chance it could come back and we would end up with problems during IVF if we went forward with a damaged tube.

I’m actually having surgery on Wednesday to remove the tube and was told once it’s gone we should have no problems conceiving nataurally (just to note, we had all the fertility tests done on myself and my partner and everything else looked fine). Also I was told that having it removed doesn’t necessarily reduce your chances of TTC to 50% as the other tube overcompensates for the loss of one and works more efficiently

I thought when I found out about my Hydrosalpinx it was the end for us but it totally isn’t I’d just say research the best you can (reputable sites) and when you have your appointment ask as many questions as you can and get all the info you need from them and make sure you take someone with you as it can be incredibly overwhelming. Good luck in your journey if you need to know anything else I’m happy to talk xxx

Wow, that's great. Thank you so much for the massive and positive response.

Xx

And I wish you all the best this week xxx

lucyC1987 profile image
lucyC1987 in reply to

Your welcome, I wish I’d been able to hear from people who had gone through it when I was first diagnosed. It gives you some reassurance that things can be better. Hope you get your answers soon. Thank you, I’m not looking forward to it but just want it over so we begin trying again xx

Yes, I can imagine you will be after waiting for such a long time.

Onwards and upwards as they say! X

LHow81 profile image
LHow81

I had this diagnosed 5 years ago. I had both my tubes removed and then went through IVF I had 3 fresh cycles and one FET which ended in a positive and my son is now 16 months. Good luck to you

in reply toLHow81

Thank you so much for the positive news. And congratulations. It's really good to hear that it all resulted in a positive outcome x

Hi Camillage, sorry to hear about your diagnosis. I was diagnosed with a double hydrosalpinx in Feb 2016. It was devastating. Unfortunately it was not the only thing against me. I had one tube removed completely and one was so badly damaged and disturbing the ovary that it was snipped away but it's still there. I have made a full recovery physically but am still waiting for my miracle. I wish you luck with your journey.x

What a journey Good1hannah. Wishing you all the best in your quest. X

Bebespera profile image
Bebespera

Hi Camillage,I was diagnosed with hidrosalpinx at mi first natural pregnancy (that ended up in a miscarriage). They told me to do an HRSG to confirm but that test seemed to show that everything was ok. So I lost a precious time ttc with the hidrosalpinx. I went through another ivf and had a miscarriage. Then I decided to change doctor and the new one was sure that it was an hidrosalpinx so she had my tube removed. Since then I had a pregnancy that I didn't miscarriage (but had to sadly end due to cromosomical failure).

I guess what I am trying to tell you is that although it may seem worrying, I think removing the infected tube is for the best. Otherwise it may cause miscarriages. The surgery is a laparoscopy and it's quite simple.

I send you a big hug

in reply toBebespera

Wow, thank you for sharing. What a journey you have been on. It is strange how the diagnosis is so difficult. I wish you all the best with your next try. Xx

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