Hydrosalpinx : I'm going through a... - Fertility Network UK

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Hydrosalpinx

Weezeaj profile image
8 Replies

I'm going through a second cylce of ivf. We were successful with our first cycle but unfortunately miscarried at 11 weeks.

Up until now all scans and tests including the hsg have come back clear and we were diagnosed with unexplained infertility.

I've just come back from a second scan monitoring ovary stimulation and they've found what they think is fluid in my right ovary. It didn't show up on my first scan a week ago so I'm really confused.

The Dr mentioned that I may need the tube removed which I'm heartbroken about and I'm so confused by it all.

I hope this post makes sense as my head has been spinning since the scan!

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Weezeaj profile image
Weezeaj
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DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK

Hi Weezeaj. I was so sorry to read how upset you are, and thought I would explain what has happened. Not too sure what you already know about this condition, so I will cover it as best I can, with apologies if you already know some of it. The condition is called “hydrosalpinx”, which when translated, simply means water in the tube! Fallopian tubes have a natural lubrication in them to allow sperm to swim and the egg to travel down. Occasionally, the end of the tube(s) called “fimbriae” can stick together. This then blocks the “exit” for excess fluid to escape. There is then only one way out for this fluid and that is through the womb end of the tube. Many consultants now believe that this excess of fluid can prevent implantation of a developing embryo, as it can be “washed” out. Because of this the tube is often dealt with prior to treatments such as IVF. The whole tube can be removed or clipped, Your consultant/doctor will explain which option he/she feels would be best for you. Unfortunately, there are no other options for the condition. I do hope this helps with the explanation, and I really wish you well with whatever is decided. Thinking of you. Diane

Weezeaj profile image
Weezeaj in reply toDianeArnold

Thank you Diane, I'll try not to dwell on it too much over the weekend as I have another scan on Monday. Hopefully I'll take more in then as I'll have had time to digest everything.

DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK in reply toWeezeaj

Hi Weezeaj. I'm sure they will look after you, and let's hope it's better news. Diane

Leesalou profile image
Leesalou

I've got hydrosalpinx, it's took ages to find out that I've got it,

Had a failed cycle back in 2011 then did say there was something mid cycle but I chose to carry on rather than abandon it, but it unfortunately failed, which they think now could of been because of hydrosalpinx,

After failed ivf I had lap surgery and they removed my left tube, then told me to try naturally. Which nothing happen then I gave up for nearly 6 years,

Then went to doctors last April and went through the whole investigation again, hsg, another lap in dece that reveal the hydrosalpinx was now in my right tube which is now clipped and I'm now awaiting my date for my 2nd cycle of ivf,

Big hugs xx

thejourney profile image
thejourney

I was diagnosed with bilateral hydrosalpinx I'm May after surgery to dilate my cervix, and had both of my tubes removed in December after IVF for freezing. I was devastated at the time, but am now having my FET on Wednesday. it upsets me that we will never be able to 'accidently' get pregnant but I've been told that having had the tubes removed will increase the chance of a successful cycle!

Weezeaj profile image
Weezeaj

Thank you everyone. I'm feeling a little better today. At the moment it just feels that I'm not destined to become a mother and I can't get my head around the fact that a week ago there were no problems!

amy_c you've given me an extra glimmer of hope. Good luck for Wednesday!

72cloud9 profile image
72cloud9

I hope they can reassure u more on Monday. Best of luck xxx

Weezeaj profile image
Weezeaj

Hi everybody,

Just a quick update. I had to go ahead with egg collection as I responded really well to treatment and the outcome has brought good news and bad.

Unfortunately I do need to have my right Fallopian tube removed, there doesn't seem to be any damage to the left but until I have the surgery they won't know for sure whether removal of both will be for the best.

On the up side they retrieved 18 eggs! After only having 2 taken during our first round I can't quite believe it!

I'm waiting in anticipation of the phonecall to tell us how many fertilised but I'm feeling a lot more positive.

Hopefully there won't be too long a wait for surgery and then we can go ahead with the FET and god willing get the bfp and healthy pregnancy we so desperately what.

Thank you all for your kind words, I'm praying this isn't the end of the road for us but just a slight detour xx

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