1 hoop down 3 to go! Consultation on IVF services in Kent

[AnnieAnnie]

Hey all, i had an appointment today with my consultant following the recent good news in the increase of my AMH. Now that ive jumped through one hoop i have a few more to jump through before i am eligible to receive treatment on the NHS. So i am booked in for a transvaginal scan this Thursday and i need to have a FSH blood test and swabs at some point next week, following all these coming back in line with guidance, we get the go ahead. Im feeling positive 😁 we picked our clinic choice today so all is ready to go. So today I find out that my local CCG is looking at cutting the number of cycles they offer from 2 to 1 as the big NHS squeeze hits. So ive been sending out the below link to whoever i can to see whether they will vote to help keep services as they are to help woman like all of us. If you would like to vote, please click the link and scroll down to the poll. Thank you xx kentlive.news/news/kent-new...

[Lizzielizzielizzie]

Done.

[AnnieAnnie in reply to Lizzielizzielizzie]

Thank you x

[TTCs]

Great idea sending this 💞

[TTCs in reply to TTCs]

Also glad to hear of the positive steps in ur journey...may they continue 💞

[AnnieAnnie in reply to TTCs]

Thank you! I think it's important to help others like us. Hope you are well xx

[Lucylu_88]

I've voted. I live in Medway and this would be so devastating for so many.

I really don't think people understand the importance of this and how utterly heartbreaking this is.

Really hoping they think again about this.

xx

[AnnieAnnie in reply to Lucylu_88]

As a service user, having been referred back in September 2017, I had no idea this was taking place until yesterday. Its definitely going to have a devastating effect on a lot of people. Feel free to share the link with as many people you can (any one can vote) 😁 I've emailed my local CCG for details of the consultation because I could not find them anywhere on their website (probably hurried somewhere) xx

[Lucylu_88 in reply to AnnieAnnie]

I'm not on facebook atm but I've asked my fiance and family to share. This really saddens me. I think I will write to my local MP.

If there's anything else you find out let me know and I'm happy to try things to fight it.

xx

[AnnieAnnie in reply to Lucylu_88]

Brilliant let me know how you get on and we can keep each other posted. Good luck xx

[Tugsgirl]

Done ✅ xx

[AnnieAnnie in reply to Tugsgirl]

Thank you xx

[Phris]

Voted. Hope all goes smoothly for you xx

[AS100]

✅ done! That’s a link to Kent news right? Is there also the CCG consultation, which would be a longer questionnaire? Think there should be 🤔 Where I am they tried to cut the service from 1 ivf to 1 ivf for women between 30-35. There was such outrage that they didn’t thank god. Worth fighting 💪

Good luck with your next hoops Annie! 💖 xX

[AnnieAnnie in reply to AS100]

That's the only information at present I can find about it. I emailed my local CCG requesting information and asking exactly where on their website is the information (they have other consultations on their at the moment) but I have not heard back yet. I've sent a further email and will call them next week. I have looked everywhere on their website and can find nothing, but that doesn't surprise me. I could be that It's due to be launched so hoping I can spread the word quick. Thank you and good luck to you xx

[AS100 in reply to AnnieAnnie]

Ah ok, I hope they get back to you, persistence is the key! CCGs all seem to run slightly differently 😣 I can’t believe the ins and outs of this whole postcode lottery! Xx

[Clarebret]

Hi Annie, where do you live? I’m in Ramsgate and spoke to My doctor re wait times etc today, we are getting married in August & already know that we will need IVF with ICSI (fiancé had testicular cancer 2 years ago) . That article says decision made in August, I’m wondering at what point do you have to get referred before they can say yes or no to 1 or 2? Do you know? Seems so unfair! Best wishes

[AnnieAnnie in reply to Clarebret]

Hi Clarebret I'm also in east kent 😁 I've since asked for an FOI request from the ccg and they have confirmed that they are considering proposed policy changes to assisted reproductive therapies and funding but have not yet agreed to go ahead with policy changes and if they do there will need to be a full public consultation but there is no consultation happening at the moment. So who knows when it will happen but it's an idea to keep an eye out for any consultation, every vote counts. I'm trying to get eveything sorted before the change does happen. The guidelines are already stringent without any further changes! And yes very unfair. I've been trying to get referred for around 2 years now, they seem to drag every blood test, scan and appointment out. Best of luck to you, my advice is just keep on at them and get everything done as soon as possible so you don't get any hold ups. The AMH blood test is a killer, my last one took over 7 weeks for the results to come back.