New to this looking for some advice on where to start

Hi everyone

I have just been diagnosed with severe endo at the age of 40 and I am 5 weeks out of surgery having had one of my fallopian tubes removed. Without going into too much detail about the mess of my insides....I just wanted to know where to start to find out about how many eggs I actually have with a view to potentially freezing them. I asked my consultant and heard from her by letter but she has only suggested i speak with a fertility expert following our next appointment in six months time!!!!! I can't wait that long, i need to act now if i am going to do this. I am not in a relationship anymore but would like to consider freezing my eggs incase there is a possibility of having a family in the future. Any advice on the first step, thoughts on freezing etc would be much appreciated. I will start to go through the site looking for some answers but having done the same on the endo site I know how easy it is to get lost in threads worrying about stuff that hasn't even happened yet. I'm just after practical where to go what to expect, advice if anybody is able to offer that...

Thanks in advance:)

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  • Hi Weec, I think the tests you want are AMH, fsh and the antri follicle count. The combination gives a picture of the ovarian reserve but I don't think it tells you anything about quality, unfortunately. I'm sure most private clinics offer these tests. It'll probably cost a few hundred pounds but will be much quicker than the NHS! Hope that helps and best of luck!

  • Thanks Charlene.....I really appreciate you taking the time to reply x

  • Yes, Charlene is right, AMH (Anti-mullerine hormone) will fall as you age, mine went from 15 when I was 39 now down to 6.6 at 43. FSH (Follicle Stimulating Hormone) will get higher as you age as more FSH is needed to try and stimulate your eggs as not so many of them left. Astral Follicle count will also show how many "resting" follicles you have and gives you and the consultant a better idea of how you may respond to ovarian stimulation. I had a scan of 9 at 43 and I got 6 mature eggs retrieved each cycle. Also a day 3 estradiol (oestrogen) level will tend to be higher when you have a low ovarian reserve too. (However, you can have higher oestrogen for a number of other reasons too) So all these things together will give a better picture, HOWEVER, they show nothing about quality and as we all know things are on a major decline post 40. I've always had levels which fertility consultants have said have been above average for my age, but that means nothing when 5 IVF cycles down and I've not had one egg grow past day 3 between the ages of 39-43, so you can have "better than average levels" but still not have the quality. Add into that mix a bout of endometriosis and that can have a big effect to. I was under diagnosed for over 15 years and when finally operated on was riddled with one of the most serious cases of endo my surgeon had seen, that alone can do untold damage to eggs unfortunately, something will can not be shown by any blood test. You may have to pay about Β£190 for a private consultation with a fertility consultant, however, I think it would be money well spent when time is not on your side. Best of luck Sx

  • I have severe endo and only one tube and ovary after that horrid disease stole the ones in the left from me.

    To pipe in, amh cannot be done by your gp. Can only get it done privately or by fertility specialist.

    After my tube and ovary were removed it took about six months for my hormones to calm down, not that it should stop you from investigating your options.

    Do you know if you qualify for nhs funding or are you looking to go private? If private you can go ahead and make an appointment as soon as you are ready. On nhs it can take alot of time to get things going

  • I had the blood test yesterday for my amh count. You can have it on any day of the cycle and my fertility consultant sent me for it and it's costing Β£50. I assume this if cheaper than a private clinic. The blood goes to London and the results will be back in two weeks. If your consultant won't send you maybe your doctor would? X

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