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Living with Fatty Liver and NASH
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How has your fatty liver changed since diagnosis?

Since you were diagnosed, how has your fatty liver affected you? Has it progressed, got worse or stayed the same? Has your doctors advice paid off at all?

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It has progressed to cirrohsis stage A.

I have developed other symptoms. Bloated, itchy skin. Swollen feet . Severe fatigue.

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Thanks for joining this community and sharing your experience. We hope the community will provide support and helpful information.

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A year ago I was diagnosed with Nash 80% of my liver is fat I worry about cirrhosis. My next biopsy is coming up August 7th.

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It has progressed to cirrhosis; frequent jaundice; pain in the area; oedema affecting legs/ankle and less energy- but the last one could be down to my mix and match of conditions.

The doctors advice has levelled my cholesterol and helped me to keep my portal vein pressure down

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Thanks for sharing, hope this community gives you a little extra energy!

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After my biopsy showed NASH I went on a committed exercise plan of indoor cycling, dance classes, weight watchers online and lost around 20 pounds. My liver blood tests are much better but not normal and my MRI and ultrasound tests show significantly less fat. I feel great. Fingers crossed.

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Thanks for sharing. You might also be interested in following one of the HealthUnlocked weight-loss communities such as healthunlocked.com/nhsweigh... where everyone is encouraging each other. Indoor cycling sounds like a convenient solution, do you do it at home or at a gym?

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Thanks! I'll check that out too. My indoor cycling is at home taking classes using the Peloton bike. On weekends I take dance classes at a gym.my physician has been supportive of this program as well as taking vitamin E supplements.

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Sounds very practical to do this at home. I have seen the Peleton ads on TV. It would be great if this program could be "prescribed"?! Less expensive and more effective that some medications. I think the subscription is around $40. Did you use your own exercise bike and then subscribe to the classes? I think the subscription is around $40.

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It is more than that and the bike itself is costly but well worth it for me personally. I don't mean this as a formal endorsement of the brand and suggest exploring with them regarding pricing, etc.

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Great to hear good luck god bless!

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Over 12 years since diagnosis of Nash, my liver was stable .On last hospital visit I had fibroscan and it showed a decline and that I am at risk of fibrosis and cirrhosis.

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I often have discomfort below right ribcage. Doctor puts that down to IBS, although I have had IBS for 35 years and have only had this discomfort in the past couple of years. I also have swollen lower legs and feet, legs are blotchy & itchy (no cause given). Excessive fatigue (blamed on FMS/CFS)

I don't know if the fatty liver has got better or worse as doctor doesn't mention it.

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welcome to the community, I hope you find it helpful. I heard that itchy skin is a very common sign of liver problems but also lots of other things. Thanks for sharing.

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I noticed for the past several months before I was diagnosed with NASH stage 3 that I had excessive annoying itching of skin & excessive fatigue ( which I blamed on my hypothyroidism. I thought I was just more fatigued than previously with age). Only after NASH diagnosis in May 2018 did I learn that both are symptoms of liver disease.

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Same here sweetie

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Now i have a DR that is learning about APS and realizes that what was being seen on scans could be Fat --Blood clot's and to include Micro clotting or scared or dead liver .understanding this sis what brought my Dia. down from stage High 3 's to mid one's - but now am not sure where i wil be .

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Thanks for sharing. There is quite a lot of discussion about APS in other communities on HealthUnlocked such as healthunlocked.com/search/a... that you might find helpful.

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I never really had any symptoms. I am diabetic (type 2, approx 8 years) and assume the fatty liver came along as a result. I started a low carb high fat diet in march 2016, and a liver scan this march showed my liver had returned to normal. My diabetes is in remission too. I lost quite a lot of weight. Feeling good all round . ☺️

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To answer the question about my doctors advice: he picked up the raised gamma gt level in routine blood test, sent me for liver scan and told me the diagnosis. I was not advised anything apart from what my diabetic nurse was telling me. I found out about the low carb high fat diet, read the books and did it all myself. My diabetic nurse is complimentary, my doctor says I should be his poster girl for how to get it right!

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I've been the same, but explains why I'm so tired. 😴 I now watch my food choices (sodium).

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Up until 2 yrs ago, it fluctuated and it seemed that there was little to be. Had I believed that it was purely my DNA and not made some dietary changes I may well have been in a much worse position. Its time the medical domain woke up to the fact that fat does not cause fatty liver - carbs (sugar) does! I have proved this by being my own 'case study'

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Angelatonew, we seem to have had much the same journey. Are you doing a low carb high fat diet?

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Sorry , must have missed this question.

My condition has not really been monitored. A fibroscan ordered by my endocrinologist confirmed diagnosis but no further plans to check again.

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Found this information and toolkit for assessment, hope it is helpful for some of you

nice.org.uk/guidance/ng49/r...

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No one seems to find any urgency or what to do for NASH f2.

Lose weight. See a nutritionist. I still know nothing after numerous times of asking how do I know where I stand? Same, worse, or better? Not one answer.

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I have no other info, just seems like that's all there is to tell me, having a fatty liver is the end. I am not sure what nash is? Trying to determine what I should be eat, my wife has suffered with IBS over40 yrs. & the diet is almost exactly 50% off from what I should eat so how do we eat this ... 2 different diets on a fixed income...

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