My 9yr old son has been on oxybutynin since June, and there has been an improvement in his bed time wetting, especially in the last 2 wks. However I have a major concern about him taking the oxybutynin and the research that has been done regarding its link to dementia. The research I have read has been linked to the over 65's. I can't find anything linked to children, probably because I doubt the research has run long enough. I have even more concern as my son's grandad (my FIL) has just been diagnosed with early stages of dementia. I am seeing my sons consultant on Wednesday. Does anyone know if there is anything else I could suggest he try. Desmopressin we have already tried with little success. I have read about Tolterdine tartrate which I understand is not licensed for children but some specialists have prescribed it. I know of one lady on here who's daughter is taking it but is there anyone else?
Anyone else feel like me with regards to dementia but for the sake of their child need to get the bedwettimg sorted. I really do not know where to go next or what to suggest. TIA x