Do some kids never reach rusty tea?

[Ajis91]

My daughter has been on max doses of laxido and senna since 6 months and we've never got to watery poo. Infact, she mostly does type 4. Any explanations as to why?In August I upped her laxido only as occasionally she would have tiny poo marks in her pants - it wasn't thick, smelly or dark & she was pooing regularly. The increase lead to larger poos (a sign of constipation I thought from past experience)

October a xray showed moderate faceal loading. Peadeatrician refusing to do a repeat to see if she is clear.

Bowel clinic very unhelpful.

Her ttg level is raised though and celiac screening <0.2. Dr has requested second opinion.

Long & short - has anyone experienced disimpactation where the child's bowel get clear but without rusty tea? And has anyone had type 4 poo on full dose (months in) & knows why.

Thanks

[Yaleamanda]

Yes it's definitely possible. Contact the Eric helpline for advice.

[Ajis91 in reply to Yaleamanda]

I have but advise was to get rusty tea on 2 occasions then decrease. But she's 6m on full dose, so was wondering if other parents have experienced this. She also had other disimpactations before with rusty tea after 6 weeks

[Yaleamanda in reply to Ajis91]

Rusty tea water is not always achievable. 6 Months on the full dose, I would definitely be seeking further medical advice.

[Ajis91 in reply to Yaleamanda]

We have both a peadeatrician and bowel nurse and both have been very unhelpful. Our Dr is trying to get a change of peadeatrician. Just wanted to seek others experiences here, as the medical ones don't seem to know. Thanks.

[Yaleamanda]

What have they suggested? Are you under a paediatric gastroenterologist?

[Ajis91 in reply to Yaleamanda]

Nothing really, review in 6m. Daughters 9 and had these issues since birth. No, there isn't one in my trust, I was told shel get referred to 'surgeons' I assume they mean gastro, which is in another trust. Can't seem to get straight answers. Her ttg was raised.

[Yaleamanda]

Ask to be seen by a paediatric gastroenterologist.

[Ajis91 in reply to Yaleamanda]

I did, as soon as I realised the peadeatrician isn't a gastro or holding any special interest in this. He was stumped.When I asked to see someone with a specialist interest in gastro or just a gastro & advised I am happy to travel outside our trust as they don't have the correctly specialist. They said they'd refer her to surgeons for scopes.

At last review they forgot about this surgeon thing, but I was sent a copy of the letter they sent to them (didn't give details of what team or hospital).

The bowel clinic knew her dosage (12 laxido and 20ml senna, she's 9) and when this was started & asked when I last did a disimpactation. I pointed out this is the dose for that. They then said this is her maintaince. She was doing so well on 4 a day for ages & nothing has changed in her life or diet. It's so frustrating.

[ERIC-Charity Partner]

As mentioned, this needs further investigation with a health care professional. You can talk this through with one of advisors on the helpline if you wish but essentially they cannot medically prescribe so we would be required to signpost you back to your health care provider. You can seek a second opinion if necessary. We would not expect a child to be disimpacting for such a long period of time. It may be worth considering a sweetcorn test: eric.org.uk/how-fast-are-yo...

[Ajis91 in reply to ERIC-Charity]

She won't eat sweetcorn, but we were also advised this isn't reliable as sweetcorn or small particles of food can pass impactated stool