Hello. My 4 year has been on oxybutynin for 8 months now. We saw a urology nurse this week for a flow rate test and she advised me to take my daughter off the oxybutynin.
She said she didn’t feel like it was doing anything.
I’m a bit worried about this, my daughter has always still had wet patches even while on the medication,has a lot of bladder spasms and sudden urges.
Today was the second day off it and it’s like she has no control and was leaking everywhere.
We’re waiting to go back and see the doctor next week but I just wondered if anyone else has taken their child off the meds and what happened?
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Michelle33MB
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My son was only on Oxybutinin for 4 weeks and made him worse. Pediatrician said to take him off. We stopped immediately with no consequences. Waiting to start another medication after 2 weeks break.
My daughter was on Oxybutinin for about 8 months and it reduced her wetting hugely however I was quite concerned about her staying on it long term and then she started soiling on it so we weaned her off it and wetting returned. I think the medication helped reduce my daughter's twitching bladder so she could tell when she needed the toilet (ie had a full bladder) however without the medication she can't differentiate between a twitch and a full bladder and so has bigger accidents and wears pads. We haven't gone back to oxybutynin because I know that she also has some bowel issues which oxybutynin makes worse so we are trying to get on top of these first before even considering trying oxybutynin again...
Sounds exactly the same as us at the moment. Saw the nephrology dr again today and she basically said she’ll outgrow it and we just need patience and timed voiding/double voiding etc which is easier said than done with the fact she’s only 4 and at school. Feel like I’m back to square one again. Already gone through all this.
Hi, my son has been Oxybutynin for 3 years and a half now. He is now 7. We have been off it regularly. The first month he does quite well, but then symptoms are still there: urgency, frequency and holding manouvers... However until he was 5 and a half he used to soil daily (maybe due to Oxybutynin?) but we decided to go on because his symptoms were very severe and he was ashamed to wet (he had small patches only on his underwear)... Now things are slightly better but there are still bad days.. I was told overactive bladder improves with time and that 7 is a good age but not enough still. Doctors told us he will grow out of it before puberty... I think towards 9 or 10 years... So hold on! Should you need further information, please let me know! Good luck 🤞
My daughter is 8, coming up to 9 and on oxybutinin for the last few years. At first it made a huge difference, but not so much recently. She didn’t take it all through the holidays and only had a couple of accidents. The dr advised to come off it and she has been ok at school this term. I think perhaps she is just growing out of the problem. The poo withholding is another matter!
My son was on Oxybutinin, it did work but I wasn’t keen as it has been linked to dementia in older people (no research done in children as yet). As my son’s grandad has dementia anyway I wanted him of it. He is now on Trospium Chloride which has helped greatly. He now only has the very odd night wet.
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