14 yr old bed wetting

Hi my son is 14 now and he has been bed wetting his whole life! I've tried the alarms the medicines, he's had a scan (which has shown debris in his bladder). But the urologist doesn't seem worried as he's emptying his bladder ok. He is on oxybutynin at 2 per day. And then 1 desmomelt before bed. I feel like I have tried everything going now! I've been reading some of the comments and I can't see anyone with children around this age who still continue to wet. Just looking for some support as I don't know anyone else who has a child with this problem.

18 Replies

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  • You are not the only one - feeling the same as my son is 13 and we have tried everything. Not had a scan though., was it useful?

    We are currently using the Eric bed alarm where you can record your voice , vibrate & alarm noise. After 9 weeks and the odd dry night (never had one ever) we then had 5 dry nights. Cllocks changed & wet again 😬

    However he's dry this morning, so going to persevere. Apparently there has been some research on smoke alarms to say kids don't wake up to noise but they do to voices. All other alarms he's just slept through.

    Good luck & let me know if you find anything.useful for older kids. 👍

  • We tried the alarm years ago and it frightened the life out of him. I think he is just such a deep sleeper. Where did you get this alarm from? He had his ultrasound in October, so he was 13 then. It was useful as they check all the liver and kidneys etc, so a relief to see they're working normally. It did show that before he emptied his bladder there was debris in it, but no one seems to know what it is from, as all urine results are clear. We're now under urologists at the hospital and have to go back in June for a review as he is on oxybutinin during the day. Sometimes he will still wet but they seem to work 80% of the time.

  • Hi -you are not alone. My son is 14 and has wet all his life. He's under a consultant ( only for the last 2 years) and has had several scans and we know he has a small bladder for his age. He is supposed to take capsules (which I can't remember the name of as I am on a train) and drink more to help stretch his bladder but he finding this difficult to do at school as he doesn't want to keep asking to leave class. He also takes a desmomelt 240 at night which works most of the time. He has to be sensible and not have any fizzy drinks and all the usual stuff they tell you. He is a very deep sleeper and nothing wakes him in the night (not even if he's soaking wet). Good luck.

  • Just to say Eric do pyjama pants that contain all the wee have a look. Good luck x

  • Oh brill. Thankyou. Not sure he will go for them tho. Are they like nappies?

  • No look on their website under me merchandise they are just like pyjama bottoms x

  • We didn't like them, I bought 2(!) and they are stiff, very hot and leaked at the top.

  • Oh what a shame such an expense but thanks for letting the rest of is know x

  • Just had a look they are a lot of money but they do adult sizes and pyjama shorts. They are about £60!! Xx

  • Oh wow really? That's a lot of money. Thanks for the info. I will check it out later. I spend so much money on mattress, pjs and bed sheets etc. Even left the plastic on the mattress this time round and the wee has corroded it all. There is no financial help we can get anywhere for any of this? Xx

  • I know it's a ridiculous amount. It's such a pain for you all don't know what else to say as my daughter has the constipation issues. I wonder if there are any other companies that do stuff like that? Good luck x

  • My son was given a toilet pass to be able to go whenever he needed to. He was wetting on way home from school and i found out that he had been holding it all day because the boys toilets are disgusting and kids wee all over the floor etc. So they have given him a pass to use the nurses toilet now. He takes desmomelt too but and finding that recently it is not working. Maybe he is becoming immune? He is same as your boy, he sleeps deeply and wetting will not wake him and some days even if I can smell it he doesn't realise he's wet!

  • Thanks for the info - we are under consultant but never suggested scan, but will ask as have apt in hold. Tried medications of varying types & nothing works at all + drinking more, no fizzy/cadence/dark drinks... consultant wanted us to take excessive medication way above UK recommended dose but possibility of dementia in later life (so said no way) he then wrote to GP saying 'mum declined medication' (as if we'd never done anything 😬) so patronising.

    We got alarm from ERIC website. My son also slept through all the others - I think you can just do your voice & turn off other noises. Bit disconcerting the first night for me to wake up to my own voice telling him to go to the toilet!! 🙃 Nearly always wakes to it though. So tough for them - my son is going for sleepover & I guess he'll have the take pull-ups. Friends know but starting new school in September so wish it could work for him.

  • I'm sorry to hear your child is still going through this into their teenage years. It's more common than you realise but people don't talk about it, that's all!

    So thank goodness for this forum!

    My son has daytime wetting and is on Vesicare/Solifenacin (previously tried oxybutinin and tolterodine with little or no change)

    He has also had scans and wee'd in the special toilet to see if his flow is normal. Everything seems normal so for us parents it's still a mystery. Urology nurses have suggested a Urodynamics test which tests bladder function from the inside. We're waiting for that appointment to come through so maybe before your next appointment you contact the Urologists secretary t pass on a request for one of these tests? Sounds like it's a test they use as a last resort as it's quite intrusive!

    Randomly I've cut out tomatoes/tomato based products as I read somewhere they can irritate the bladder as well as citrus fruits. The wet pants have marginally reduced so I'm like other parents will try anything!!

    Good luck

  • My 10 yr old (11 in July) isn't dry at night and never has been. We saw specialist at hospital who told us not to try alarms til he was completely dry in the day. So we have not even tried them yet! He occasionally wets in the day but usually when he has been too engrossed with something (TV or Computer normally!) to recognise he needs a wee and go, not sure if he doesn't realise or if he being lazy! The daytime wetting is decreasing and rare these days though, so I'm about to try an alarm. He has school trip in Sept 2017 and would be fab if he was out of pullups by then. He went on a trip a year ago and the teachers were great and kept it very discreet and helped him with his nighttime/morning routine but it was stressful for him and I don't think he would want to go on school trip again if he has to go through it all again. (also will be at secondary school with teachers he has only just met!)

    He is a very heavy sleeper and I'm wondering the best alarm to get. I've read about a wireless type that sounds appealing as the least intrusive for him the better I think. I have just read comments about one that you can record voices on - does it do normal alarm sounds as well? As they are pretty pricey I would like to think that the one I buy does the trick and I don't need to keep buying different types. I know everyone is different and I'm not expecting a magical formula but can people recommend ones to me? I think Malem are the best types ?? That's what the hospital told us anyway - can anyone give me some advice please? I would really appreciate it.

    (Note he has tried desmopressin but it had no affect whatsover!)

    Thanks in advance

  • I just happen to be reading up about different treatments for nocturnal enuresis on kidney.org Under Medications to treat bed wetting it mentions a drug called Imipramine. Have made a note of it in case Desmomelts don't work for my son. It may not be of any help but thought it worth mentioning. Xx

  • Hi did you try using the alarm with professional guidance/support?

    In this site you can find lots of useful information

    bedwettingexpert.com/catego...

  • Yes and unfortunately it scares the life out of him. He's recently had flow tests and has been referred for an investigation of his bladder. So am just waiting for this appointment now.

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