Hi, I'm new to this group and looking for help and advice.
My son has had complete bladder incontinence for 5 years now and he is nearly 14 years old. The start of this condition is unexplained. From urodynamics, it is proventhat he has overactive bladder and poor voiding, however medication offered such has desmopressin, solifenicin, betmega, oxybutynin have not helped his symptoms.
He has had botox twice and PTNS treatment, but with no success. He has had MRI and brain scans, hormone testing with no remarkable findings. We have just such started acupuncture privately as NHS will not support this. The hospital seems to have nothing more to offer and I am absolutely desperate for him.
Does anyone have any experiences or advice which they can share with me?
Also does anyone know how to get a referral to Great Ormond Street as we have been through East Lancs hospital, Manchester Children's hospital and Alder Hey in Liverpool and we are not finding a successful treatment plan for him.
Thank you in advance.