I have suffered from autoimmune disease since I was born and have endured massive pain before but it was in waves, so I had times of peace.
We moved to Cornwall in September 2012 and I was very stressed and anxious at the time. As the days wore on I felt iller and iller with intense lower back pains and lower abdomen discomfort a fever and took to the settee for about 3 weeks.
I ended up in hospital in the worst pain I have ever felt and was passing blood clots. After scans and ultrasounds they found cysts on my ovary and suspected endometriosis. Six months later I am still on the settee and in intense pain sometimes for days on end. I am being investigated but the treatments seem so harsh.
I was advised that they could stop my cycle but there are risks attached it's like the devil you don't know yet.
What treatments work? Surgery for me is a life or death option because of the previous surgeries that I had done.
This has taken over all our family life and has taken me hostage. I have never felt this miserable or not in control of my health before, my diet has completely changed and I my appitite has decreased quite alot depending on the levels of pain.
The pain relief helps but it does not completely take it away, I am on Codiene, paracetamol, and Oramorph every few hours.
I hope we all find an escape to this awful disease.