I was diagnosed with endo in 2004 and have done lots of research over the years. However, until today I've never discovered the RCOG Green Top Guidelines on the treatment of endometriosis. Here is the link:
I urge every endo sufferer to read this extremely carefully and to save it for future reference. This document outlines the gold standard methods for surgical and medical treatment of endo, using info from studies to back it all up.
It's a fascinating read, especially since many GPs and gynaes have told me things in the past which directly conflict the information held here.
Here are some of the things that struck me whilst reading it:
- Surgery should not be carried out within 3 months of hormonal treatment to avoid under-diagnosis: I've been on some form of hormone treatment during every lap and even had one clear lap (which was when I was on the strongest hormonal treatment). I even questioned a gynae on this once and he said it wouldn't make much difference
- There is inconclusive evidence as to whether anti-inflammatories improve endo pain: I had one doctor tell me my pain couldn't be endo because voltarol didn't help it!
- Zoladex etc alone does not improve your chances of conceiving: if you're found to have endo and it's affecting your fertility, a course of hormonal treatment won't improve your chance of conceiving naturally. However, it can improve your chances of conceiving with IVF and surgery to remove endo will increase your chances of becoming pregnant.
This is fascinating stuff and is real ammunition for endo sufferers - we should all be very familiar with the content of this document, mainly because too many GPs and gynaes are not.
This could help us all to get more effective treatment - I hope you all read it an that it helps you.