I always thought there was something wrong with me, when i was a teenager I used to take time off school with my periods. Despite going to the doctors several times they just told me to go on the pill. Over the last 15 years I tried several different types of pills and my mood swings were all over the place. I tried my best to come off the pills but the clotting and pain was so severe I always went back on them. I had several scans to which docs replied that there was nothing wrong with me and that i would 'grow out' of the bad periods. It was until i got married 3 years ago, when I started trying for a family did doctors take me seriously. I eventually went to see a gynaecologist who said straight away that he suspected I that i had endometriosis. I had never heard of endometriosis before, I had a lap a year and half ago which diagnosed it. In a way I felt relief that I now knew what was causing me all the pain and discomfort but I never anticipated the lack of understanding and support from others. Some days the paid was so bad I felt like fainting, it was a struggle to get through the day & especially with watching friends and family members conceive so easily and have babies. Some days at work i felt so ill but I was determined to get to 5pm as i didn't want a bad sickness record. A couple of times i asked my manager if i could leave early and the responses were ' just go home and get a hot water bottle' 'it's only period pains' 'it's a figment of your imagination' and one really hurtful comment off my own pregnant sister was 'at least you've got your ovaries' to name a few. I couldn't believe the ignorance. I'm still facing this today and I know it's difficult for people to understand when they don't have this condition but it doesn't take much to show a bit of sympathy and understanding but all i've come across is ignorance and it really gets me down. Recently tried 8 months of zoladex which was like a breath of fresh air, even with the hot flushes and joint pain it was better than bleeding every day. Before I started zoladex i couldn't even walk upstairs without bleeding so any type of exercise was out of the question. Whilst on zoladex i joined the gym and felt much fitter. I came of the zoladex 5 months ago only to find that my periods are exactly the same as before, i am totally disheartened as I really thought it would have helped. I am back to trying for a family and I go to gynaecologist every 4 months, I would love to have a family. I really don't think that people without this realise how lucky they are. I am determined not to let it take over my life but i have to admit some days endo has won and i end up feeling so depressed. I've even noticed some people i thought were my friends are keeping their distance from me at a time when i need some support. My husband doesn't always understand but he has been going through a difficult time with redundancy and although he has found another job it doesn't pay well so there is a lot of reliance on my salary which is another pressure on me, He gets angry with me when i have mood swings even though i try to explain that im not feeling well. Most of the time he has been supportive and i don't know what i would do if he wasn't around, i think sometimes i try to push him away and at times i've said to him to go get another women and have a family. I do worry because we are in our 30's and my husband would make the best dad in the world as he loves kids and i feel like a failure for putting our relationship through this. I really feel that endometriosis isn't widely known and doctors should be aware of symptoms so that diagnosis is much sooner, i waited 15 years to be offically diagnosed and i don't think that is good enough. With more and more women having this condition i feel that better research should be carried out and more awareness made of the condtion. facebook and blogs like this are a step in the right direction in terms of spreading the word and supporting each other through this.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.