Hello, thought as I'm new here it might be easier to write a blog post rather than asking tons of questions on various threads.
After having my son I found I could no longer tolerate any contraceptive pills, my aura migranes increased and I began vomiting during periods for days at a time. I always fought against the mirena coil I felt the doctors were always pushing me to have as I'd heard such mixed reports from friends and thought my body could use a break from trying out all these things. I started to severely flood, my period would soak through layers of clothes. Blood would pour out of me all over the floor and I was constantly changing sanitary towels which were no match for this at all.
I was investigated by GPs, they suspected ectopic pregnancy on more than one occasion and when it was proved that wasn't the case they just didn't want to know. I'm sure many of you have experienced the constant battling with medical professionals, to not be fobbed off with "women's troubles." It is baffling and makes me really angry that it should be this way.
I collapsed at Christmas with a huge burst cyst. I also had agonising cramps which I was told in A & E were due to degenerating fibroids. Since then a consultant has told me none of this was true and it was all down to my endometriosis.
After many internal scans they finally agreed with much nagging from me to give me a laproscopy. They found stage 4 endometriosis all over the Pouch of Douglas. After I'd recovered from the op I did feel a bit better for about a month then the old familiar pain gradually crept back again, as did the cycle of arguing with doctors, desperate for someone to take my pain seriously. I managed to get a gynae referral and they found another cyst and thought the pain I was experiencing was down to referred pain from my groin down my leg from that. I felt so relieved there was an explanation.
My consultant said the cyst was not large enough to have caused any problems but he thought I would need help with pain due to the severity of the endo he had found (and removed.)
He refused to even consider a hysterectomy and has put me on a course of Zoladex injections. I was told not to expect to feel anything for the first month. But boy did I! The side affects kicked in after the first two weeks. I had migranes continually for a week or so. I felt constantly nauseous and had horrific joint pain making it hard for me to even walk up the stairs, (more severe at night.) I was in tears worrying that this was what I had to go through to feel better eventually but a blog post on a site such as this made me feel so much better. She explained what the doctor hadn't, that the body is flooded with hormones for the first month which it then stops producing. The following week the symptoms eased and I actually had more energy than I'd had in a year. I still had pain but was hopeful.
I had the second injection a fortnight ago, no side affects but my pain is severe. I constantly have an upset stomach and some days the exhaustion makes me want to go back to bed (not possible with a three year old and my own business!)
I am trying to stay positive and hope this drug will kick in after all I have months left to go. What I find confusing from various forums is that other (younger) women are offered a hysterectomy (which I know isn't a guaranteed cure) and yet I have been told at 37 I am too young. I would be really interested to hear others experiences. xx