This is going to be long sorry but any infor would be good! Was having all the classic symptoms of endoalong with a very low immune system and was getting very ill. Had various tests including ultrasound. This all started in around June this year, though I have had some of the symptoms for a good few years. Was all getting a bit much this year and was having to take time off work etc. After trying various hormone pills and various painkillers, I was at the end of my tether, my GP only wanted to give me the mirena coil. I refused the coil and had to push to see a gynea. Only after explaining that I have full private medical cover did I get to see gyne. First appointment with gynea ran through some of my symptoms and he thought the best thing would be a hysteroscopy and an endometrial ablation. Was told recovery was minimal, only other option would be hysterectomy. So had that done, hysteroscopy just found my uterus was enlarged. To cut long story the op made my symptoms worse and I bled constantly! Went back to gynea who said that only option was hysterectomy. I had to have a full abdominal due to enlarged uterus. Had op 1st october, follow up 6 week check was this week. Pathology showed cervix nothing remarkable (was worried as I have had pre cancerous cells removed before), fibroids the largest was the size of a tennis ball, endometriosis and adenomyosis. Now I know my gynea is no expert when it comes to endo, his opinion is that a hysterectomy is a cure! I know this is not the case with treating endo. What are the chances of it coming back, I have been told it can be as high as 90 percent if not all the endo has been removed. I have to say even though I am still recovering from the op I do feel better and a lot of my symptoms have gone. I no longer have back ache, I am not aneamic, obviously the bleeding has stopped, I no longer have that awful dragging feeling, legs stopped aching, the list goes on! I just don't want it to come back. I just want my life back. Thanls for reading and so sorry its so long. Has anyone else had a hysterectomy with endo? I am going to think and be very positive!!
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