I am newly diagnosed with Endometriosisis. I remember having the pain as a teenager, but because of a variety of reasons (including PMT and severe Acne) I was put on the pill from about 14 and stayed on it until I was 31 after switching from many different brands that I didn't think suited me.
About one year ago, I started feeling the pains again and the only way I could describe it was as growing pains, i supposed because it reminded me of being a teenager. It started initially with aching thighs just before and during my period, until over the last few months, it has been constant, with pains in my lower left back, left leg, left side of tummy and shooting pains in my groin and bum.
I had an ultrasound in September, and thankfully there wasn't anything too sinister but he doctor suspected it was Endometriosis (which up until recently I had never heard of). It's all been really quick to be honest, and I saw a consultant within a few weeks, them had the Laparoscopy and Hysterscopy last Friday evening.
The next morning the consultant confirmed that indeed it was Endometriosis and the ulcers had attached themselves to the back of my womb, hence the severe leg pain. He classes it as stage two endometriosis at the moment. I have to go back on 28th November to discuss how to manage it going forward, and he says the progesterone only pill. He says the irony of the whole thing is that me being on the pill from 14- 31 is the thing that has been keeping it at bay but I had no idea. Coming off it, as caused the problems.
I am signed off for two weeks off work now - he says that some women need more, it depends on the individual. I was ok initially other than the obvious pains from the incisions, and have been dosed up on painkillers and anti-inflammatories. I have been sleeping all the time, which is not like me, so that is good in itself. However, from Tuesday onwards I have been so sick, and on Tuesday night in the early hours of Wednesday morning I felt like I had the worst hangover of all time. I was sweating, my head hurt so badly I cannot explain, I couldn't stop being sick, so much it was hurting me so badly and I thought my stitches my split. This went on for well over 24 hours like this and has gradually got better. The headache stopped mid Thursday but the sickness continued yesterday. I have now stopped the painkillers in case they are causing the problems as I would rather have the pain than the headache and sickness.
Now I have the continued wind (which I was warned about, which is also starting in my shoulder blades) and I have groin pains - so much so I actually woke myself up with a pain in the early hours this morning. I think I must have tried to move the wrong way or something. I now have a bit of spotting down below. I didn't really bleed too much after the op.
Other than that I am utterly exhausted and emotional
I just want to check that all this is normal..... I am assuming it all is as it is surgery after all - but I just feel a bit lonely (even though my family and boyfriend are being amazing) - I don't feel they can truely understand.
Sorry for the long message - just having a bit of a long rant!
Thanks all. Nic x