Zoladex gone wrong? : Hi allI'm looking for... - Endometriosis UK

Endometriosis UK

74,685 members54,011 posts

Zoladex gone wrong?

Lornalost89 profile image
10 Replies

Hi allI'm looking for anyone with experience of zoladex being injected incorrectly.

I've been using it for almost a year and no problems. However my last injection 14 days ago exactly. The nurse struggled a little.

Since them I've had a pain in the injection area now with a little lump like I can feel the implant which is getting increasingly painful.

Nothing extream just certain movements etc I wondered if anyone had experiences like this.

Thanks in advance

Written by
Lornalost89 profile image
Lornalost89
To view profiles and participate in discussions please or .
Read more about...
10 Replies

Hello

Years ago I had a gp do my injection instead of the nurse. He aggressively insisted in putting it right down near my bikini line and ignored my protests. He did the injection and before I even made it off the couch and too the door I was calling out in pain and doubled over. My sister was in the corridor and she even heard me, she was just about to hammer on the door when I came out. She asked the doctor what have you done to my sister and was really upset. I wasn’t right that whole month. If I had been a bit more with it or less traumatised I may have put a complaint about him. I also have had nurses argue between themselves that it only goes on the left or right abdomen and not central because of something to do with your belly button and underneath it ( can’t remember what it is properly) other nurse didn’t bother about that. Sad thing is we have to trust the medical profession with our health.

Sunset-lady profile image
Sunset-lady

This bloody injection. The administering of it over this last 14 months has been more stressful than the side effects. I've had consultants hit a capillary so I bled like anything and bruised. I've ended up im A&E desperate for someone to give it to me to stop bleeding and a lovely nurse is reading the instructions on how to do it. I've had a practice nurse at my GP push it in so deep and hard that I was utterly traumatised and then one nurse got the safety cap locked so she had to wiggle it about. To be fair she was really upset. I actually think it didn't work that month. Try not to worry. It's a tiny implant and it's dissolving as we speak. It sits under the skin and yours might not have been put under sufficiently which is why you can see it. If it breaks the skin get yourself to the doctor. You may find that it doesn't work very well but I wouldn't imagine they'll give you a second one. You could, if it gets really bad, ask for your next one earlier. Refuse to have that nurse again and tell your GP why. They need training and often they don't do these injections enough. My mate is a nurse and she said nurses hate giving them as they are tricky. Meanwhile Prostrap is just an injection in the arm! I would have asked for Prostrap if I'd known how difficult people would find this injection x hope you're OK. Don't touch it and keep an eye on it. Is it a one month or three month injection? Xx

Lornalost89 profile image
Lornalost89 in reply toSunset-lady

Hi. It's a 3month injection but I actually already have it 8 weekly as it wears off earlier. This one got stuck the nurse apologised funnily enough I dont find the injection painful normally it never bothers me but this is now more when I sit down/when my pants touch it etc which has worsened over the 2 week

It's nothing terrible but I just thought is it possible it hasn't gone deep enough hence why I'm feeling it.

I have a feeling my consultant is ready to take me off it and pushing for surgery as I haven't been able to tolerate HRT either

But normally the injection works wonders for me so fingers crossed this is a one off

My consultant was baffled as to why my local hospital started zoladex rather than prostrate but didn't want to swap me x

Sunset-lady profile image
Sunset-lady

What are your symptoms when it runs out?

Lornalost89 profile image
Lornalost89 in reply toSunset-lady

All my endo symptoms return (not to the extreme they were prior to the injection) moods all over the place, acne, pelvic pain, that feeling of carrying a bowling ball, the heaviness of like my period was about to start the endo belly, leg pain, the fatigue every single thing.

The only symptoms I have continued with the injection is back pain / some mild sciatica it's only been recently i kept note and ask my consultant who said it sounds like it's wearing off and to bring it forward as its common, I have very very minimal hot flushes and no other menopause symptoms. My mental health and brain fog have been 100% better than when at my worst with my endo symptoms x

Sunset-lady profile image
Sunset-lady in reply toLornalost89

This could be because you've suffered from PMDD. This is what my consultant said to me. My mood on zoladex is the best I've ever been x good luck. You're a good candidate for a hysterectomy if you feel good on it xx

Lornalost89 profile image
Lornalost89 in reply toSunset-lady

This is what me and my partner have discussed. May talk further with my consultant about it again my next appointment however I find my current telephone appointments not the best. She wanted to get me in for surgery but keep my ovaries and I declined. Until they agree to remove them I don't want it. I feel reacting well with zoladex shows they should be removed aswell x

Sunset-lady profile image
Sunset-lady

How old are you if you don't mind me asking? You can stay on zoladex quite a while as long as you have bone scans. I have endometriosis stage 4 and HRT kicked everything off. Ovaries give you hormones for life but if you suffer with the hormones it's better not to have them. A good book is Surgical Menopause on Amazon (mountains on the front) xx

Lornalost89 profile image
Lornalost89 in reply toSunset-lady

I'm 37, they say I'm too young atm to have them removed but I just keep believing the fact I'm fine with zoladex, unable to use HRT so far (tibolone,kliovance & another tried) and just brings all the symptoms back including bleeding. I'd like to say that's evident enough for whatever reason I'm just better without hormones. My family and I have battled for over 20yrs now as my problems started soon as I reached puberty took me until last Yr to eventually get a diagnoses x

Sunset-lady profile image
Sunset-lady

Have you tried natural progesterone rather than progestins. I cannot tolerate progestin but utrogestan has been great x

Not what you're looking for?

You may also like...

Zoladex

Hi I had a zoladex injection a week ago today. I've felt fine until last night. I kept waking up...

Zoladex

Hi peeps, saw consultant yesterday due to endo, I'm 31. I had my first zoladex injection yesterday...
ashc86 profile image

Zoladex

Hi everyone! I wondered if anyone has had spotting or cramps between zoladex injections? I started...
Sar_ profile image

Zoladex question...

Hi all, I had my first lap on 12 September and now have Stage 4 endometriosis confirmed. A few...
gld87 profile image

Zoladex...constant headache

Hello everyone, For about 5 days now I've had a constant headache and often feel sick with it, and...
Kirstiexxx profile image

Moderation team

See all
Msunited profile image
MsunitedModerator
LivWilliams27 profile image
LivWilliams27Moderator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.