It turns out I really do have endometriosis and I had a laparoscopy but it was done by regular surgeons who could only diagnose it and since my symptoms are really really bad I’ll probably have a second surgery in a few months to get it all removed and I’ll start taking hormones in a few weeks, so my body has already adapted to it when I keep taking them after the surgery. Since my diagnosis I haven’t really talked to anybody about it, because well I know how they’d all react and I feel like it wouldn’t help and also I still haven’t realized or really accepted it? How do you guys do it?
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Gymgirly
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For me i suspected endo for a very long time before diagnosis so for me hearing the confirmation almost came as a relief/ validation. I'm not sure i have any advice on how to accept it, I guess we are all on our own journeys. For me i found it helpful to research and read up about how to help myself. Lifestyle changes help to manage symptoms and that's something I can control.
I think acceptance is the first step to taking some control.
I also think it's easy to get in your own head about things, you could be surprised by how others react. Do you have a close friend/relative you could confide in first? x
Its a hard thing to accept. I had suspected endo then jan 2024 was confirmed with lap surgery Im waiting for hysterectomy so far waited 9 months and been 1 year on zoledwx for the pain and hrt.
We all have our own journey and ive found the husband is my rock, he been to every app so he hears and see what im going through.
Im currently nit working due to this but the husband is but he helps me through every break down, app etc so if u have a partner or close friend it helps
When it came to my endo diagnosis I was happy the doctors were finally listening to me to get to that point of being diagnosed. I was very sure I had it due to the issues I had had for so many years.
That being said with my diagnosis of other life altering illness (many years ago now) it was very different. At first I was so happy to have a diagnosis to feel like I wasn't just being silly there was something going on.
I then went through the 5 stages of grief for the life I thought I would have - denial, anger, bargaining, depression and acceptance. They can happen in any order and I personally went back and forth through these stages multiple times.
I wanted to bring this up incase you go through this also. So you know that it's normal to feel lots of different ways about it.
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