Stage 4 Year 6 Still Struggling - Endometriosis UK

Endometriosis UK

73,647 members53,589 posts

Stage 4 Year 6 Still Struggling

endoruinedmyskelly profile image
0 Replies

I'm at a rough spot. I've had 5 laparoscopic surgeries, including a hysterectomy, and still having severe and disabling stage 4 endometriosis pain. I had adenomyosis as well. I currently have alopecia, severe pelvic floor dysfunction, a twisted pelvis, anterior pelvic tilt, thyroid nodules, abdominal lesions, hip dysplasia. I'm sure I'm forgetting some as well. I don't have insurance at the moment and am in pure agony. My mental health and stability is very low and I'm trying to recover from an eating disorder. I've tried all of the hormonal options, all the pain relief options and nothing is helping. I have PMDD as well. Since my insurance has terminated, I'm quickly running out of medications including Myfembree. Any help is appreciated.

Written by
endoruinedmyskelly profile image
endoruinedmyskelly
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

A year on since diagnosis and still struggling

Similar story to many I suspect: since the age of 15/16 I had terrible pain with periods, this...
KibbsnMeeps profile image

Recently diagnosed with stage 4 Endo

I have just had a Diagnostic Laproscopy and Hysteroscopy with Biopsy 4 days ago and have been told...
skt68 profile image

Stage 4 Endometriosis

Hi All I just wanted to share my story, I have suffered with Endometriosis for many years now. I...
Marie3811 profile image

Fertility plan after surgery with stage 4 endometriosis

Hi I'm, 33years old, I have suffered with serve pain from endo for 18years. But finally after 4...
MissyMe2 profile image

Year 4 of coil and fed up

Hi all, I need to find a specialist who will basically give me a hysterectomy. I'm 26, have been...
ReeD profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.