Stage 4 Endometriosis

[Marie3811]

Hi All

I just wanted to share my story, I have suffered with Endometriosis for many years now. I have had a number of operations over the years and find that the Endo just re-occurs and gets very painful. I have swollen tummy always, feel bloated and I am always tired, feel very hot and drained. My periods are irregular and sometimes disappear for months and then out of the blue re-appear. My Endo is quite severe and has taken over my organs, including my bowel so I have just had an MRI and will be scheduled for surgery soon. How does everyone else feel? Thanks All

[SarahK73]

was diagnosed aged 22 I am now 45.

I have had 15 laparoscopic surgeries a bowel operation and a hysterectomy.

I’m currently in hospital again for compacted stool due to adhesions on my colon.

This means being on a drip and having laxatives as well as eating a low residue diet almost the same treatment as if one had Crohn’s disease.

So although a diagnosis may help the condition is about life long management and getting used to always having some form of pain.

Hope you get some answers soon xxx

I write a blog which has some further tips

Https:://endometriosis.live/

[Marie3811 in reply to SarahK73]

Thank you for your message that is a lot of surgeries I have had about 5 so nothing in comparison. They will be operating on my bowel this time also which is scary I hope all goes well for you. Its really difficult from day to day as I am always tired and do feel pain. I wish you all the best and thanks for the link I am also writing one! x

[Domsher]

Hi Marie,

What happened with your surgery?

I have been diagnosed with stage 4 and already had an endometrioma removed in April. I am now awaiting a date for a full hysterectomy and bowel surgery.

[Marie3811 in reply to Domsher]

Hi Domsher thank you for your message my surgery is tomorrow AM scary I know 😭 I’m doing my bowel prep it’s horrible I will keep you posted they are doing some bowel work tomorrow

[Domsher in reply to Marie3811]

Well good luck for tomorrow.