Unable to exercise

[Hannah27]

Has anyone else had this? I usually run once or twice a week and do aerobics. The last time I ran 10km I had the worst flare up I've had for ages, the pain started during my run and just ramped up. I've gained 10lbs very very quickly. I feel hideous. I feel like I'm wearing a fat suit. It's awful. I've never been big, apart from after having children but then I've always made effort to lose etc and keep active. I miss exercise so much, more for my mental health than anything. I hate being so out of control of my body. I have my 2nd lap next week. I'm so nervous but hoping I can lose some weight and bloating. I'm so fed up of this illness controlling all aspects of my life!!!

[Dotty75]

Hi Hannah,Yes I hear you! and am sorry. Running does the same to me. I'm not a frequent runner like you but did park run a few times and had to stop. I cycle a lot and am generally okay with that but when I was rushing to get somewhere once or twice and really went for it pedalling fast, I had intense pain. Each time its only lasted about 30mins but was very strong. I felt like my insides were being twisted, felt instantly sick and like ud faint with the pain! (I didn't!).

I've since been diagnosed with stage 4 endo and adenomyosis with my uterus stuck to my bowel. I'm awaiting next steps, likely a hysterectomy and ovary removal, and slicing away from the bowel.

I do very light exercise now, walk a lot (got a dog so daily) and strength exercises at home like squats and sit-ups to try and tone up.

[Thecraftyadder]

I found aqua fit good as the water takes some pressure off the body. However when I'm really flared up I have to be careful as cardio exercise can increase cortisol which will already be high. I found pilates useful combined with using dumbbells, especially a lady called Jessica Valant (she has a YouTube channel though I'm in her paid program) she's an American physio who has Endo herself. I've learned a lot about balancing exercise and keeping moving during flare ups from her. I have gained weight in recent years but it's a side effect of my hormone tablet probably combined with being peri menopausal. Although I'm bigger I'm happy with being more active now as it does wonders for my mental health. I hope you are able to find a level of activity that doesn't flare you up.