Hello, this is an interesting thread. Sorry to hear of your long term suffering.
Can I ask if you have had a laproscopy to also check for deep infiltrating endometriosis say in utero sacral area or pouch of douglas. Also an MRI to check lumbar spine? It's just that your symptoms you describe sound similar to mine and I have both of these areas involved.
If youve not had a lap to look at the areas youve got pain yet how could anyone the medical system say they have correctly investigated yet? Sorry to hear your getting what sounds like fobbing off.
I have been told I probably have adhesions too, on top of endo & spinal stuff. I understand adhesions can come due to multiple surgeries. I have just ordered a gentle massage roller to try that someone on here recommended that had helped them with adhesions. Its a lighter touch than trying to massage area apparently.
Where I am I have had to go privately to get any medical help. It has worked out costly but much better for me but over the years. It has got to a point where I meet a specialist and wont engage further unless they seem interested and competant. A good GP to help navigate has been essential for me too . They have helped me with pain management. If yours is not helping, you might ask for a refferal to see a pain clinic too, if it is interfering with your life.
It is so hard dealing with doctors that give you blank looks and dismissive attitudes & I think this kind of treatment is found too often in public systems. Doctors in private areas seem more willing to treat patients as clients or consumers and to listen. Best of luck navigating& looking out for yourself. Hope you catch a break with it soon & get some relief too. 🌷🌷