I posted 4 years ago about being recently diagnosed with grade 4 endo. I had two laparoscopic procedures and zoladex to treat a large endometrioma and endo that was pretty much everywhere.
4 years on I have a 1 year old baby that I was told I would likely never have! I am so so grateful to be a mum however now face more surgery as the endo has since returned rapidly with vengeance.
I had an MRI scan in Nov 17 which revealed I have endo in the POD and now on the external part of my bowel. Since being given the results I am scheduled for major bowel surgery in 3 weeks time, unclear at this time if this is going to be laparoscopic or full.
Over the last three months I have developed random bouts of vomiting which I am sure is connected to this. the last two times have been during my period but more recently a few days ago (mid cycle) I wake up in the night with tummy cramps feeling sick and then start vomiting with diarrhoea which usually subsides after 24 hours.
I really want to know if anyone else can attribute this to endo? I am rapidly deteriorating and although I know I am due to have the op soon I am still feeling horrendous and worried maybe it isn’t connected or that the endo has travelled up higher and that it wasn’t picked up on the pelvic MRI scan.
Can anyone else share their story? Also can anyone who may have been in my shoes advise how long my recover could/ is likely to be?
Hospital stay and time off work and whether I am likely to need a colostomy?
Sorry for all of the questions but I have a 12 month old to consider now so have to really prepare as best as I can.
I will of course put all of these questions to my surgeon in two weeks time.
Thank you for reading xx