What options do i have?: So, im on a weird... - Endometriosis UK

Endometriosis UK

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What options do i have?

AndAnotherProblem profile image
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So, im on a weird road of endo and ando and afew other things (that many it confuses me to remember all of it) ive just had a lapro last week and my gynaecologist has said i need to go on contraception to help keep the spread going further. Now heres the kicker! My body hates contraception. It hates added hormones. And every time ive had something it goes horribly wrong and doesnt stay put. For example, Pills - anger.... horrific, weight gain... ridiculous. I put on a stone for breathing.

Coil - didnt attach due to where my womb sits and how small it is, so when it came to taking it out when we were ready for another child the nurse was dumfounded to find it dangling in my walls and not fully opend into the 'T' shape it shouldve been. my pains were terrible every day, my moods nearly ruined my relationship to the point were he didnt want to marry me and the weight i gained was horrendous! i went from 8st after our first child to 14st in a month which then lead me to go back to my anorexia and bulimia days.

Then after being forced by my husband and his family i got steralised when he refused to get the snip. This has been the worst thing that happened to my body of the 3. Those little hoops have given me the worst pain since they were clamped in. You know the pain, you could be standing doing nothing and you end up on the floor in seconds with pain that bad you want to take it out yourself its that excruciating. Had my lapro last week and one of them decided to snap off and take a trip, it has damaged my fallopian tube so luckily we dont want anymore children.

So as you can see the most common forms of contraception my body is my opposite and is picky and stubborn. What other options are available?

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OlgaSz profile image
OlgaSz

I am really sorry to hear that you had to go through all of those things.

My contraception journey finished way earlier than yours, when after failed hormonal treatment (I also gained a lot of weight, has the worst mood swings, heart palpitations, joint inflammation, and my periods lasted for MONTHS). My gynae said that the next step is the Mirena, which I flatly refused. I felt so bad on the hormonal treatment that I didn't want to have anything to do with it ever again!

I started to go through as many medical research papers as I could find. I have made many lifestyle changes that led me to the place I am at just now - I removed caffeine, alcohol, soda, artificial sweeteners from my diet. I started to eat whole food plant based (vegan, no processed food, no sugar, no oil), I removed all endocrine disruptors I could - scented candles, air fresheners, perfume, cosmetics with SLS, so conventional shower gel, shampoo, toothpaste. I actually had to go through all the cosmetics and household cleaning products and replaced them accordingly. I am doing 30 minutes of yoga everyday to stretch all the affected areas. I found a research that says that ginger is one of the best things for painful periods so I started added it to my decaf green tea in powdered form. It started working from day 1 and it continues to improve my quality of life ever since.

These changes may sound like a lot, bit they gave me my life back. On the occasional worse day I just my TENS machine on and it is enough. I don't take any pills anymore and as a result I don't suffer from their side effects. I can recommend it to anyone as nothing so far was as effective. I hope this helps. 🤍

Cailleach profile image
Cailleach

You do not need to accept any of the hormone treatments offered to you especially given your previous experiences. They treat the endo symptoms anyway, but don’t necessarily prevent it developing further in the future.

The options would be using pain relief, as well as some of the ideas outlined in the previous answer. Given that you have adenomyosis I wonder if you have considered a hysterectomy? That might be something to discuss with your Gynae if you feel it is an option for you.

As far as contraception I think you have the option of the cap, which I have found quite fiddly, but you might want to try, or your husband using condoms. Maybe he needs to rethink getting the snip ( and not tell his family, if they’re that bothered).

Best of luck xx

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