Does Decapeptyl ever just stop working? - Endometriosis UK

Endometriosis UK

72,744 members53,178 posts

Does Decapeptyl ever just stop working?

atealdeer profile image
1 Reply

Hello. I have an appointment in a couple of months with my gynae to review my treatment. I've been on Decapeptyl for two and a half years now, with low dose HRT to keep hot flushes etc at bay. I had a lap about 18 months ago. I do have occasional pain but nowhere near as bad as it was pre-lap and pre-injection. Lately I have been wondering if the body can just stop reacting to Decapeptyl and similar injections properly? I have been having discharge that looked like what I would get at ovulation time, which has not happened for over two years. I haven't had a period since I started the injections or any signs of my cycle, no discharge changing through the month, but it has been noticeable lately. Does anyone have experience of this? Thank you for reading!

Written by
atealdeer profile image
atealdeer
To view profiles and participate in discussions please or .
Read more about...
1 Reply
endowarrior12 profile image
endowarrior12

Hi, I was interested in your post as I’ve been on Decapeptyl now for almost 3 years. In the past once the initial flare up caused by the injection I used to get a period of relief, atleast a few weeks of feeling well and in less pain. I noticed about a year ago this stopped happening and told my gynae consultant, she suggested trying the one monthly injection instead of 3 monthly. This made things worse still and I started bleeding and cramping too. I see a specialist next month so I am keen to discuss this with them. It’s a lot to put our bodies through but I was prepared to put up with the side effects for those blissful few weeks of relief but don’t even get that now. I have just lately been diagnosed with adenomyosis too so that may explain worsening pain but I’m not sure. Maybe an adjustment to your HRT could help? Or maybe worth asking for an MRI scan? This was how I got the adenomyosis diagnosis. Sorry this isn’t much help but I don’t see many posts in long term Decapeptyl so just wanted to reply to let you know I’m in the same boat and can sympathise 💛 x

Not what you're looking for?

You may also like...

decapeptyl side effects

Hi Ladies, Hope you're okay and not in too much pain.Went to see my consultant today first time...

DECAPEPTYL?

I have had endo for 3 years now. I have only had one LAP which showed that I have endo in quite a...
Sammy1986 profile image

Decapeptyl Side Effects ? Fibromyalgia ?

Hello ! I've been wanting to reach out to people about this for a very long time and I was hoping I...
Flossie96 profile image

Decapeptyl & HRT

Hi All So I started HRT just over a week ago as addback therapy while I am on Decapeptyl...

Decapeptyl injections

Hi all hope everyone is well! I recently joined this and I am so happy that I did and to Learn...
Jawaireyam profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.