DECAPEPTYL?: I have had endo for 3 years... - Endometriosis UK

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DECAPEPTYL?

Sammy1986 profile image
7 Replies

I have had endo for 3 years now. I have only had one LAP which showed that I have endo in quite a few places, scattered about.. I have now been put on DECAPEPTYL injection and wondering if any of you ladies have been or are on this, im on it for 9 months and so far have had nothing but headaches :( Just wondering whether these will calm down?!

Thanks!

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Sammy1986 profile image
Sammy1986
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7 Replies

Hi

I had this injection a week ago and I started to get headaches but they seem to have calmed down now. I do feel very tired and tetchy, and today started with thrush!!!

When did you have your injection?

Miranda x

Sammy1986 profile image
Sammy1986

Hey Miranda.

I had my injection on Monday last week!

Really feeling sluggish and tired.

Nooo! Not thrush! I best not be getting that :( Its horrid all the things we got to go through to stop the endo pain :( xx

Amy080710 profile image
Amy080710

Hi, I was put on these injections last year. I had 1 and was supposed to have 5 more. 1 was enough for me, I felt worse in myself than I did before, got very down and also had really bad insomnia (not good with a 2 year old to look after!) Everyones experiences are different. I just couldn't cope on it and with the way it made me feel. I am now trying for another baby for as long as I can cope for then if nothing happens I will have to stick to 1 child and have the hysterectomy I'm only 29!! :o( Good luck with all your treatments xxx

conker profile image
conker

Hi, i have been on thes injections since Jan this year i had headaches like migrane for a couple of weeks, they do go away though, my injections last till July, dont know what to do then!!, have fibroids and endo,dont really want hysterectomy.xx

Sammy1986 profile image
Sammy1986

@Conker, its a horrible situation because you dont want to be on HRT for the years leading up to menopause either but wouldnt it be great to get this injection for years :)xx

conker profile image
conker in reply to Sammy1986

Hi Sammy1986, id like injection for another year at least but my flushes and night swets are going worse now,think its because my injection is wearing off!

Sammy1986 profile image
Sammy1986

You best see gynae and discuss :) not experienced sweats of flushes yet. Fingers crossed. Do u also have sore knee joints? Xx

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