So in July had an awful Urine/kidney infection.
Having 2 lots of antibiotics I got rid of the infection but pain doing repeat yrine tests to check it came back high red blood cells & high white blood cells. Sample would be sent off to be grown & nothing could be grown so no infection.
However I have had to do repeat urine samples & blood tests every week since then.
So it came to ahead two weeks ago when I literally can't function like a human being now, I've not been right since July-
Pain in tummy
Pain in kidney area & base of spine
Sometimes pain when seeing more so it's just after I've weed I get terrible pain
Constant urge to wee but then a dribble
I'm drinking & consciously trying to drink more but the fuller my bladder the more pain I get
I'm eating but not much really (I love food!)
I'm 12st as well 5.5.
Periods mixed but flooding
Pain when I open bowels
Every limb aches by the end of the share I feel 100years old
My head is puddled
Temperature up & down up & down
So now I've had several antibiotics form my GO they sent me for ultrasound which was horrendous pain but showed swollen kidneys & bladder doesn't empty properly
So the GP actually rang the new consultant urologist to explain & move situation along then rang me at 8pm at night to tell me what was said.
I got an emergency consultant appointment with urologist who said its definitely not endo.
He said he wants to do a utomology test (blow bladder up like a balloon via your urether & rectum & see what it does with all fluid) I really do not know if I want this test seriously I don't.
He said its not stones as none on scan.
He said for reason he didn't know or not telling me is my kidneys swollen not draining properly so the urine us back filling & poisoning me.
So then I went to see urology nurse because he wants me to self catherterise myself everyday.
I goes to see her & have a great time learning this new life skill for my CV.
I hve to self catherterise 3xs a day. This is to drain old urine out & flush my kidneys.
But I managed it once with nurse, once at home but I damned near passed out.
Then failed attempt yesterday morning but blood instead. Then failed attempt yesterday afternoon then bloods but a trickle like I'd scraped something I hope but no urine whatsoever!
I rang urology nurse & left a message no reply.
Today I'm going to ring my GP because they seem to be more forthcoming with ideas at lest as to what it might be & not keeping anything back.
The cons was brilliant very understanding of endo in no way dismissed it but said it definitely wouldn't cause this.
I'm off work or the first time ever, I'm still trying to be mum get the washing done etc & take my lad to school so when I'm driving I don't take tablets but then I end up in a star of mixture of pains.
I can't win I feel
Like I'm 100, I feel guilty for not doing catherterise right & am I wasting their time is it something else?!
#endo -#catherter #urine #kidneys