Fatigue: I was diagnosed with endo about a... - Endometriosis UK

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Fatigue

Purplepet23 profile image
19 Replies

I was diagnosed with endo about a month ago after my first laparoscopy. I’ve had symptoms since I was about 15/16. One of the things I struggle with the most, that has been progressively getting worse, is feeling tired and fatigued all the time. I never have any energy and don’t feel like doing anything.

I take wellwoman plus vitamins, 4000 I.u. Vitamin D (as deficient), probiotics (endo affects my bowels) and Sertraline as struggle with depression. Is there anything else I could take to help? Or remove and replace?

Thanks in advance x

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Purplepet23 profile image
Purplepet23
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19 Replies
Leahgal profile image
Leahgal

Hi there.

I am sorry to hear you are struggling with tiredness and fatigue. My best advice would be to read 'healing endo' which is a book by Katie Edmonds. I got a lot of advice there on vitamins and diet to help with these symptoms. Hope it helps. X

Pacotj profile image
Pacotj

this is the symptom I find most debilitating as well. Amazingly enough though I was recently admitted to hospital for pain management and when on liquid morphine my pain was like I hadn’t had in years and as a result my fatigue dropped by over 50%. So I’ve come to the realization my fatigue is predominantly cause by being in constant pain from the moment I wake up till I go to sleep. I do also take vitamins ones specifically for endo and inflammation but having my pain managed was the biggest changer. Unfortunately now I’m home it’s back to the same old where I am needing to nap 3 times a day and just brushing my teeth exhausts me.

Purplepet23 profile image
Purplepet23 in reply to Pacotj

I’m sorry endo affects you like that! I agree with the fatigue though - I feel like I need to nap all the time and small things are exhausting! I find it frustrating because people think I’m lazy but I just have zero energy.

Dimah profile image
Dimah

I'm sorry - it's so debilitating. What helped me was a change in diet. Or a diet overhaul actually. For a long time i cut out all carbs, starchy vegetables, grains, sugar, dairy. I wasn't even allowed fruit other than berries. Its similar to the Keto diet. After a while I tried adding foods, so now I can eat dairy, most vegetables, and limited rice and potatoes. It's changed my life. I still limit activity, but am functional. I hope you find something that helps you.

Purplepet23 profile image
Purplepet23 in reply to Dimah

Thank you. I know that diet will help but I struggle with this so much as I’m always hungry/craving sweet or salty foods. I have zero willpower!

KezMurr profile image
KezMurr

Hello! First, just to rule out any potential deficiencies like B12 etc, get a blood test done if you haven't already. If you're deficient in something, the multivitamin tablets don't always have enough to correct a deficiency. Definitely worth doing.Next, I'd look at diet. Are you getting enough leafy greens, veg and fruit everyday? Cutting way back on refined sugars and salty foods. If that's all good, I find that forcing myself to exercise helps. Even just a walk around my block. The fatigue can be so frustrating though x

Purplepet23 profile image
Purplepet23 in reply to KezMurr

I am having bloods again tomorrow. I have suffered with B12 deficiency in the past and currently a vitamin D deficiency. I probably don’t eat enough fruit and veg - because I’m so tired, I don’t feel like prepping/cooking which I know is bad! I used to enjoy going to the gym but just don’t want to go anymore.

KezMurr profile image
KezMurr in reply to Purplepet23

I totally understand! It can feel like such a chore. For my greens, I just make a smoothie, 2 cups or spinach/kale, 1/2 cup brocolli, 1 banana and 1/2 frozen cup mango. Then I throw in about 1/4 teaspoon turmeric for inflammation and 1tbsp of flax seeds which also helps inflammation, and a dash of coconut milk or whatever milk you like. Sometimes I also add a tbsp of peanut butter which is quite nice. It's such a quick and easy way to bang in the green veg and get all their super veg glory! Might be easier for you too. Have you ever listened to 'How not to die' on audible, highly recommend! It's by a doctor and all about how diet impacts disease and mood etc.

Don't feel bad, it's bloody hard to have endo sometimes and all the crap that comes with it!! Go on you for booking the blood test. I also go through phases of being all about the gym and then I get so demotivated by it. You're not alone! Go easy on yourself xx

PS - I have it on my bowels too... the joys! Lol

Purplepet23 profile image
Purplepet23 in reply to KezMurr

Ahh that sounds like a good idea, I hadn’t thought of doing it like that.

Will definitely check out ‘How not to die’ . Thank you for your advice.

Deep dive into Katie Edmonds Heal Endo to work out what’s your best route.

Everyone has variations on a theme but essential is high quality Omega 3 with the correct dose and ratios of EPA and DHA. I find it invaluable for neural pain, gut healing and hormone regulation. Explore Quercitin and Reservatoral for lesion management and there is evidence to show both are involved with reducing lesions size and proliferation.

Elimination of true allergy can help - so I am allergic to egg but also while not an allergy have a lactose sensitivity which means I do lacto free. Drinking sufficient water is top, Lastly it’s not all about nutrients but also pelvic floor health. Both Katie Edmonds and I really rate it and my favourite start point for exploring this is @corerecoverypt Try listening to LeahBrueg’s discussion with Dr Angie Muller on the subject on her podcast. Number 52 @leah.brueg . Helps with regulation of body systems and proper oxygenation!

Purplepet23 profile image
Purplepet23 in reply to BloomingMarvellous

Thank you. I am gluten free and avoid certain foods as I was told I had ibs several years ago but now I’m questioning that!

BloomingMarvellous profile image
BloomingMarvellous in reply to Purplepet23

Join the gang !

Pantyline profile image
Pantyline

Hello, fellow-fatigued here...Three things that are helping me and may be worth a try:

1) Daytime sleep: meditation instead of a daytime nap makes me feel much more refreshed (something like a body scan, or an acceptance practice). Even just a few minutes deep breathing helps take the edge off.

2) Motivation: I get very tired thinking about all the jobs I need to do, especially multi-step tasks like cooking or laundry. I found it's much better when I don't think about what I'm doing and just do it- podcasts are my friends. Listening to something entertaining while pottering around allows me to get into flow mode and get over the overwhelm.

3) Diet changes that aren't brain-space consuming: I've just finished the 4 weeks glucose goddess method and without sounding like a nut I feel I've had a personality transplant. Much much calmer, overwhelm down to near zero. What I liked about it is there's no exclusions, and if you do the 4 recommended tricks at least once a day you win. I found it very kind and non-obsessive, and easy to fit into my life. I'm not eating anything much different than what's on the table for the rest of my family, which makes it easy on the mental-load. The 4 things are: savoury protein-based breakfast; tablespoon of cider vinegar in water before meals; vegetable starter (like eating 5 cherry tomatoes before dinner); 10mn low-level movement within 2h of a meal (a walk after lunch, or putting the laundry out, whatever). Find more info online or in the books.

Best of luck to you xxx

Purplepet23 profile image
Purplepet23 in reply to Pantyline

Thank you. Will definitely try doing these x

ChocClem53 profile image
ChocClem53

I feel exhausted all the time , but I’m convinced it’s the coil for me. So I get how you feel I’ve been taking iron tablets called floradix that really helps .

Purplepet23 profile image
Purplepet23 in reply to ChocClem53

I don’t have the coil or any other contraception as they make me horrible! I’ve never taken iron tablets before.

Pantyline profile image
Pantyline in reply to Purplepet23

iron tablet make me constipated, but I’ve had very good results with the “iron fish” (anemia reversed in next blood test). Basically you boil a cast iron shape in water for 10mn and drink that once a day (better in tea or soup). I’ll do 10 days of this when I feel especially peaky and/or around periods (now on double-pop so no longer have them). Plus the fish looks cute and the brewing process makes me feel witchy. Taking my fun where I can ;)

Cocoacupid profile image
Cocoacupid

hun see if you can see pain clinic dr as they can help unfortunately there was a wait go or me from being diagnosed last April to seeing her in the November of last year. They can help as more holistic approach.

Purplepet23 profile image
Purplepet23 in reply to Cocoacupid

Ok will see if I can do this

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