I’ve had endometriosis for the last 10 years. I’ve been lucky enough not to have the severe pain that some people get, although after surgery in 2013 to remove tissue adherence from my colon, my gynae was surprised I wasn’t in severe pain. The main symptom I have is dull aches and severe fatigue which has lasted up to 2 weeks some months. I’ve associated this with endo because it seemed to be tied in with the dull aches and spotting I had in between periods. As this was a fairly new symptom which cropped up about 5 years after my initial diagnosis, I wanted to have a check-up to see if anything had changed and also talk about these symptoms. For the last 5 years, I’ve been harping on about the fatigue to doctors and gynaecologists without being taken seriously. The last visit was in January this year when I told the registrar gynae about the fatigue and low mood. She looked at me confused and said, “There are no studies to prove that there is a link of fatigue to endometriosis, you must be pre-menopausal”!
There obviously needs to be an official study in order for doctors in this country to start taking this seriously (that’s if I’m not the only one of course!) I would like to be part of that study, having suffered without any guidance to treatment for so long. 5 years ago, there weren’t many google results on this link. But now, there are many and there have been studies by Americans of women with this condition showing that there is definitely a link between endometriosis and fatigue. Whether they are true studies, I don’t know but we need an official UK study!
By writing this, I’m hoping that I’ll have a few/many responses saying that they have the same or similar symptoms and are also frustrated with the lack of study into the link and want one done in the UK so that doctors will take this seriously because it greatly affects our quality of life!!