I started with an odd symptom. Pain lower back and spread to the front on left handside. Already been to see a GP and ruled out UTI. Its not settling had it for 5 days. Just got a hot water on it constantly. GP just said its an odd place to have pain. Not sure if this is a new symptom of endo.
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Awwy
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Trust your instincts and your body, people have different symptoms and GPs are too quick to brush it off as something else, keep going back and insisting how much your struggling sorry to hear your suffering x
Trust yourself. I’d revisit the UTI query. I’d get them as part of an endo flare - zero indicator on the dip test until a week or so of extreme discomfort and usually as the flare subsided- releasing the trapped urine and all the rest. It maybe referred pain from the pelvic floor being in spasm - try @corerecoverypt for breathing exercises to help ease it .
ive had 2 things that sound like this. first was gallbladder but thats in in the center of the rib cage and back. second is endo, but what most people (me being one) dont know is endo will grow on everything and starts from the ovaries. i have complained about this for years and when i was steralised it made it worse. its now spread over my kidney on left and bladder, my gynea said it has been there for years and doesnt know how no one has recorded it in all the scans and cts ive had in the past. how i got to the point of being able to actually speak to a gyne was by having severe pain one day that lasted for hours, exploding like pain and went to AnE. GP's are scarily lacking awareness in this.
I have endo throughout my pelvis, in my bladder and urethra on the left hand side. I've been waiting excision surgery . This will be my 4th year. They keep saying to me they can't get the 3 surgeons that I need together. Wonder if it's advancing....I was at Bardoc today. Might ring my surgery on Monday.
So I have had a hot water bottle constantly on my side. Paracetamol. Nefopam. Peppermimt tea. Massaging the area. I cant tolerate nsaids. Ibuprofen or naproxen they make my stomach worse even when I take them with food. Walking. Sleeping. My GP sent them an expediate letter last year. I have another consultant I saw last week who cant start me on stronger autoimmune treatment. She sent them an expediate letter last week. I have also contact PALs no joy. Now my case is with an MP.
I get that on both sides originally they kept treating me for UTI but it's the side pain with endo Adenomyosis I think the consultant agreed but sometimes it's so sharp.
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