endometriosis : Hi, I’m new to this group... - Endometriosis UK

Endometriosis UK

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endometriosis

Addy2016 profile image
4 Replies

Hi, I’m new to this group, I’m on a waiting list for surgery to determine if I have endometriosis, I was curious about the OP could anyone help me? I would like to know how successful and if it helps once you’ve had the surgery

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Addy2016
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Lindle profile image
Lindle

Have you had a scan?

Addy2016 profile image
Addy2016 in reply to Lindle

No I’m waiting for the MRI scan to come through, I’m on a waiting list for the surgery and I’ve been prescribed Desogestrel, I’m in agony every day to the point it’s affecting my day to day activities

Kinder_Cat profile image
Kinder_Cat

Hello OP,Assuming you are in UK or where process is similar based on my experience:

If you have surgery to diagnose rather than MRI you will most like have a laparoscopy. This is one of the least intrusive surgeries. It is called keyhole surgery as you will have a small scar on your belly and a second one on your belly button. One for gas and one for the camera/instruments. They are tiny as the incisions are small. This is why it is normally an out patient treatment as you have and can normally leave same day. It is quite short as surgeries go and recovery time is minimal and the ones I had were quite pain free.

Normally they don't treat it during this surgery as the aim is to diagnose and see the extent (pain and security aren't always linked) and then a follow up surgery to remove which will vary depending on how bad it is and location. That said it is possible if it is an easy case they remove some there and then. They will advise you if this is the plan in pre-op.

Recovery for me was a bit tummy ache and sore but not major and that is with an errant toddler spotting the stitches and trying to pull the end out which was more painful than the rest of the recovery 😅

Hope this helps at all.

Addy2016 profile image
Addy2016 in reply to Kinder_Cat

I’m on the waiting list for Birminghams women’s hospital my consultant said it could be a 18 month wait, hopefully it’s sooner thankyou for your reply it helped a lot 😊

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