Stage 4: Hello Everyone! I had a big... - Endometriosis UK

Endometriosis UK

71,903 members52,629 posts

Stage 4

Vickyyy_ profile image
2 Replies

Hello Everyone!

I had a big excision surgery at the end of 2021, which helped a lot. However, I started to get certain symptoms again last year and they became consistent to the end of it. My Endometriosis specialist doctor asked for me to have an ultrasound so we can start investigating again, which was on Monday. Sadly, they said that my left ovary is frozen again and it has literally 0 movement. She didn't tell me anything else, just to wait for my doctor to look through it properly.

I was literally devastated! I knew that I had issues going on, but I guess we all hope for the best and maybe keep saying to yourself that it's in your head? Even though deep down you know the truth... It's just so hard to process sometimes how aggressive it can be and how soon it can come back.

I hope you all are having a lovely day though! Lets keep being strong! 🥰💪

Written by
Vickyyy_ profile image
Vickyyy_
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Moon_maiden profile image
Moon_maiden

Sorry it’s back, hope you don’t have to wait too long to get more answers and treatment.

Unfortunately it’s not in your head, sounds like you’ve got good medical support 🙂

Vickyyy_ profile image
Vickyyy_ in reply to Moon_maiden

It started off very bumpy because I have been trying to get them to take me seriously since the start of last year when I first started getting symptoms. It wasn't until December when they finally gave me an appointment to listen to me properly instead of telling me that it will stop after a while on the mini pill. But, I think we are all used to the fighting part of trying to get doctors to take you seriously😅. I am happy that I managed to get this far and hopefully there will be some answers soon 😊

Not what you're looking for?

You may also like...

Fatigue, Adenmyosis and Endometriosis

I was wondering what peoples experiences were with fatigue and Endo and Adeno. I have always been a...

Should I complain about doctor?

My sister saw one of the GPs at her surgery a few days ago because she believes she may have...

Feeling Undermined and Overwhelmed

Hello, this post is longer than I intended but I wanted to give some context - my actual question...

Removal or not of ovaries

I have stage 4 endo (DIE), frozen pelvis, bilateral tubo-ovarian complex so endo through tubes,...

CA125 level 89

I’ve just had bloods back and have raised levels of ca125. Last time I had this test about 18...