Potential questions to ask before committing to the mirena

[En89]

Can someone give me some good questions to ask the endometriosis specialist before I commit to having the mirena.

I'm very against it but I'm in so so much pain and everyone is telling me it's best to try it and tbh the more I think about it more I think what's the harm in trying in hope I can resume some kind of normal life for abit.

I'm only pop atm recently come of decapeptyl due to constantly vomiting bleeding alot and extremely low mood and bad thoughts (please note this was my own experience and must been unlucky) I know many people who had success. Like what's the difference between having the pop and mirena isn't it same hormones?

[Cheesecrackers]

I was on the mirena for 5 years for what was believed at the time just to be very heavy periods. It really was great, had virtually no bleeding for most of the time it was in until the last year or two. When I had it removed I suffered two massive bleeds, and have since had full blown endo/adeno diagnosed (no idea if they were present before mire a put in but certainly wasn't bad).

So I've wondered whether the mirena actually does anything to stop the growth/progression or does it just mask the symptoms? Might be something worth asking. Good luck!

[Cocoacupid]

hun I have tried the injection implant pill but the most relief I have had has been the coil. Like the lady before me wrote I was only diagnosed less than a year ago with die endo like she said I’ve been told it probably slows the growth as when I wasn’t bleeding I wasn’t in any pain but recently I was bleeding heavily and clots but now am in constant pain and discomfort. I think it’s had to do with having the Covid jabs as the first time round when I had the coil I didn’t feel like I do now I always feel like am having a period but at the moment since my excision surgery I haven’t bleed any more clots but I just get the really bad persistent period pain. I had the implant out as I felt extremely suicidal so honestly lovely it’s not just you I only could tolerate it for a about six months and then I begged the doctor to have it removed as the mood swings and the way I felt was not at all healthy. As I was under the community mental heath team they could see it wasn’t helping me. I also get the ovalution pain which your not meant to get with the coil but it could be it needs changing as have I had in for nearly five years. Will prob ask my gynea when I’m in my next surgery to replace it as I have to have it done in hospital as it hurts to much to cope in the doctors surgery . Take care xxx

[En89 in reply to Cocoacupid]

I was discharged from mental health team back in September as my psychologist left and they didn't have another one lined up 🤣 gotta laugh. The menopause injections has made me feel so low and slightly suicidal hence they won't do it anymore along with other reasons. Mu biggest worry about coil is impact on my mental health I'm scared of myself when I get extremely low I feel out of control and I don't really feel myself and trust myself

[Cocoacupid]

hun am sorry you don’t have that support. I was under the mental health team for years but I’m waiting on another diagnostic for Asperger’s which makes more sense to me than what they labeled me with as I was never like the other people who i supposedly had the same condition. So I feel robbed by the mental health team as they pumped me full of drugs like I was a zombie when technically I didn’t probably need them and unfortunately I was told by one mental health cpn I have fast withdrawal syndrome which means if I don’t take the medication at the same time I get very ill m. Thankfully am off some of the horrid drugs now haven’t seen the mental health team now for over two years now I was discharged sept 21. I was told I had a personality disorder but was never like the people I did dbt with I hated group therapy it made me feel worse as I felt like I took on other people problems when I didn’t need that . It s also on my notes that diagnosis and it will be hard to have that removed but am hoping once I have the other results I’ll fight to have the other label removed as I find people judge me with out even talking to me so I do get how you feel. It will be hard with out your teams support but all I recommend to you is to get a good support network that has what has helped me in some ways. I do find myself having trust issues with people but I surround myself with my few friends but mainly surround my self with my fur babies I have five of them. Two little kitty’s and three bunnies I did have four but one passed away. Yes it’s definitely hard with having a mental but also physical condition. At the same time as they both can drag us down. One thing though I have found is to try and think of at least three to five positives in my life and that has helped me try to maintain positive way of thinking . Xx

[nikogirl18]

Hey! I wish I’d asked more questions before getting the Mirena after surgery but I just went with it and it’s been pretty good for me so far!

I was on the pill for 10 years for mainly contraception reasons but the last 5/6 years my symptoms had gotten worse and I had no idea it could have been endo. I think the pill masked a lot of my traditional symptoms as I mostly had bowel symptoms and constant pain (but found out I have no bowel endo oddly enough).

Surgery in November found stage2 endo and I had came off the pill a month prior to surgery so just though, I might as well try the mirena as that’s what had been advised.

I used to be in pain all day everyday and now I have pain but not all day and not even everyday. I have had some cramping and spotting while it’s been settling in, which is totally normal, but it seems to be heading to no bleeding at all 🙏