endometrioma pain

[Eeyorecasb]

I was diagnosed with endomitriosis in May and also some endometrioma cysts on my ovaries. Since then I seen to have developed sharp back pain. Not sure if its the cysts or the endometriosis. Anyway wondered if anyone also suffered and had any effective pain relief tips as I'm struggling to find anything to dull the pain.

[Bellebell]

It was lower back pain and severe pain in my left leg (ended up unable to walk at one point) that led to my endometriosis and cysts being discovered (I had no heavy periods, irregular periods, etc. prior to surgery). Unfortunately it was put down simply as back pain until an MRI showed the cyst pushing into my back. The pain is associated with the cyst pushing into your nerves and your back. Depending on the size of the cyst, the nature and location of the pain, you could try a hot water bottle, painkillers, back strengthening exercises (my cyst is unfortunately growing back and I've increased this a lot to help reduce pain; these are not stretches, by the way) and I also tried osteopathy when I didn't realise the problem was a cyst. It was somewhat helpful but the pain kept coming back after a while... Talk to your doctor as well. Hope that is some help.

[Eeyorecasb in reply to Bellebell]

That makes sense to me. I saw GP last Friday who is convinced its muscular. Gave me some codeine. I can see me having to make a nuisance of myself.

[beckym88x]

I first started getting extreme symptoms in January this year, had an ultrasound in March through gynaecology which it was pretty much confirmed endometrioma. Due to the long waiting list for endo referral, he advised he was able to do the laparoscomy to clear it before being referred or i could wait for referral. Ichose to get the op before referral. I started to get pain in what i thought was by my kidney in August. I went to my GP thinking it was unrelated to the endometrioma and she referred me for a CT. Within 2 days they referred me for an urgent pathway for suspected ovarian cancer as since the ultrasound in March, a 5cm nodule is now 9cm. Also found growth on my adrenal glands. I had 2 mri and CT last Saturday. I finally found out Friday its not cancerous and its a bad case of endometrioma. Apparently ive got a scheduled operation in January, which I was unaware of, with the gynaecologist but due to the severity of it he may not be willing to proceed and may have refer me to endo specialist 🥴 as much as im glad it isnt cancer, i dont know how much longer i can take this pain. Its extremely worse now the pain is also in my lower back. I have no pain management and everything they have gave me doesn't make any difference. It makes it harder that i have allergic reactions to paracetamol and ibuprofen. Hopefully i will hear back from gynaecology this week with plan of what will happen now. Im also planning on asking for a pain management plan this week too .

[Eeyorecasb in reply to beckym88x]

Fingers crossed for you.

Yeah my GP doesn't seem interested and gynaecology isn't really any more interested.

Its like they think i'm attention seeking.

Hope you get sorted asap.