Unbearable Endometrioma pain and consultant won’t do surgery.

[Jako1982]

I was diagnosed with Endometriosis at 18, I’m now 38 and have been really struggling with cysts on both ovaries and endo adhesions sticking my organs together.

I’ve been waiting for referral to a consultant but couldn’t wait any longer so I went private.

The consultant I saw isn’t happy to do surgery as I’ve had a big surgery previously for Crohn’s disease.

He’s advised Zoladox injections and HRT patch which I understand will prevent future endometriosis but I’m confused how it sorts what’s already going on inside?

Thanks

[GrittyReads]

Hi and sorry that no one else with more knowledge - about what may going on for you - has replied. I'm afraid that I cannot offer much help, but I do suggest that you talk to the people at 'Endometriosis UK' who set up and run this site for all us 'Endo sufferers'. The links to 3 of the 'Endo UK' moderators - Anna, Liv and Dee - are on the right hand side, above. If they don't know the answer they should be able to pass you on to someone in 'Endo UK' who can advise. Hope this helps, take care, Gritty

[Jako1982 in reply to GrittyReads]

Thank you so much 😊 I will try them xx

[EndoJaz]

Hi sorry to hear your pain. I too have had many surgeries including a hysterectomy for endo and now am full of adhesions and scar tissue with a mass on my ovary and a bladder prolapse so I have also been advised to have the injections but I too am unsure what good this will be. I understand it can help with pain but I don’t understand that if you are having Hrt alongside then will it not still grow. I don’t know where to turn and have been asked to consider having the ovaries out next. I am just concerned about side effects of the injections as once it’s in you it can’t be taken back out. I am 46 x

[Avourneen]

TRy a different surgeon? Get a second opinion. It might just be your surgeon that thinks this.

[Jako1982 in reply to Avourneen]

I’ve been to aNHS one and a private thanks

[Avourneen in reply to Avourneen]

I think it would still be worth geting another opinion. I wish I had considered more options before my surgery. There are only a few really good endo surgeons in the UK just because a surgeon is private doesn't mean he is good. HRT patches usually cause endo to grow more not stop it or slow it down so he is gicing you strange advice. They feed oestrogen (which is what causes endo) into your body. Zoladex supresses these hormones so it's a bit like teling someone who needs to cool down to go to bed in very warm pyjamas with th eelectric blanket and hot waterbottle on and at the same time cool down by putting a cooling flannel on your head and drinking iced water. Or being told to turn left whilst also turning right. I would strongly suggest asking a different specialist doctor about this.