Hey! Just wondering has anyone with diagnosed endometriosis had urinary urgency symptoms?This is a new symptom over the last two months it has been severe ( literally empty a full bladder every half an hour without exaggeration!) it's so life altering, I hate it!
😩😴♥️
Still awaiting my diagnosis 😬
Hi there, I was diagnosed with stage 4 endometriosis a few years ago and I suffer with urinary urgency. This steadily got so bad that I was emptying my bladder nearly as soon as I’d had a drink of water. I had a laparoscopy last year & had to have bilateral ureterolysis (as one of the ureters was dusky) that didn’t seem to improve the symptoms so I booked an appointment with my doctor and they gave me some incontinence tablets. I was on Oxybutynin hydrochloride (5mg twice a day) for about a year but they made my mouth very dry & gave me headaches so I’ve changed to Emselex 7.5mg which I find much better. I still have days where I empty my bladder before leaving the house yet, within an hour, I’m bursting to go again. It is soul destroying and i do worry how this will affect me as i get older as I’m only 44 now. Hope this helps somewhat.
Hey, aww thanks for your reply, and I'm sorry you have had to experience such symptoms! It's absolutely horrific, bless you ♥️ I really appreciate your reply, I was trying to consider if this could be due to endometriosis as I am still learning all about it. Take care and thanks again xxx
Yes and often blood in urine, it also hurts when I urinate
I had bladder endometriosis; for over a decade, I had atypical symptoms (no heavy bleeding, painful periods, etc.). Instead, the ten days following my period were unbelievable. I'd have so much pain in my pelvic area, needing to urinate all the time and immediately, and experiencing pain when I did so. I had an endometrioma that was growing over my bladder and squashing my internal organs. It was diagnosed when it was huge around 15 years after I first started experiencing this. I am lucky to have worked mainly from home before it was a thing, but after I had it removed, although the bladder symptoms have improved immensely, I now have the more typical symptoms of endometriosis.
Have you had a scan yet?
Oh wow! Thanks for your reply, I'm so sorry you have had to go through that! 😩 And for so long aswell! I have had transvaginal, ultrasound and CT.. I have another ultrasound just been booked for Friday to look at urinary/kidney area again.. but I just know nothing will show and this cannot be normal, it's crazy.. I feel like they think I'm a hypochondriac the amount of ultrasounds i hae had this year! I honestly didn't know it was possible to have someone to go toilet so much! I'm sorry your experiencing endometriosis symptoms now, but glad your bladder is feeling better! Xx
thanks, you should ask for an MRI as well. That might be more helpful. Endo can affect more than just the usual organs and spread extensively over others. I would wait for some kind of solid diagnosis first, but dietary changes (less meat/alcohol/caffeine/gluten, etc. - not all but some of these) can help as well.
I have urinary urgency for about a week every month, it depends where I am in my cycle, very frustrating, especially if you’re try to live a normal life.
I agree with Bellebell, ask for an MRI. I literally had an Ultrasound a week before an MRI. The sonographer said nothing about having a large cyst on my left Ovary in her report to my GP. She confirmed Adenomyosis which was already known about but that was it, she took 5 mins. A week later a large cyst has been picked up by MRI and more, just awaiting the official report.
Bladder and Urinary incontinence
Post Op urinary retention 
Endometriosis in the News (hysterectomy, urinary tract, bowels)
SURVEY. #Endometriosis patients - that includes those WITH & WITHOUT an official diagnosis - your input is required, as a matter of urgency!
Has anyone else's endo grown back quickly after operation?
